Hi, I was recently diagnosed with RA or rheumatoid connective tissue disease (as the consultant didn’t want to pigeon hole my condition). It took me nearly a year to be diagnosed after multiple consultants, scans etc. It got to the point where I was in excruciating pain in neck and shoulders and was extremely fatigued constantly. My new daughter was about to be born in 2 weeks before diagnosis and when the pain spread to my jaw I went to urgent care as had researched and self diagnosed PMR. After breaking down In front of the (useless) urgent care doctor who refused to take me seriously I left without a diagnosis or help. Called 111 the best day who rushed me to a gp who immediately put me on a large course of prednisone. I felt like a new man the next day. I arranged a pvt consultation with a rheumatologist who gave me the diagnosis. I was put on 30mg daily of prendisone 2 months ago. My face has started to swell (moon face) of which I’m extremely conscious of and is causing lots of anxiety. Saw my consultant again 6 weeks ago who has now put me on hydroxycholroquine (typo) and started to reduce my steroids weekly. I’m starting to be in pain again but hope once the new drug kicks in it’ll clear up.
this has had such a detrimental effect on my life as the one thing I always had was my health and fitness and it’s knocked me for six. I’m praying hard the hc kicks in and makes me pain free (I’ve heard it can take at least 12 weeks).
Sorry for the long post but felt good to get off my chest.
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