I was diagnosed with cervical spondylosis and chondromalacia patella. I was 39 and had a good career, due to a combination of severe pain in my knees and depression/anxiety I resigned from my career believing within a year I would re- apply for another post - that never happened.
The pain was too much and it never let up. I did all the pain clinics and numerous procedures and many med changes nothing helped and gradually other joint became affected with OA, for despite the fancy titles at the start, it was OA.
I have it in all joints now and some birth defect that affects my hips which are also arthritic. I live in pain and from flare to flare. On the list for TKR's and hip replacements. I had my TKR cancelled October 2020, due to aortic stenosis. which was on my medical records and which I wrongly had assumed had been seen and noted.
I have DDD in my lumbar spine and that is the worst pain of all. I had to fight to get the MRI and I have had to fight for every right to be tested for why I live in extreme pain. it is so hard to fight those who are 'specialists' in the whys and wherefores of a specific condition but who have never lived with the condition or any chronic pain condition.
I am now trying to get my head around the terminology that is used by different consultants, more so the spondylosis or stenosis of the lumbar spine./cervical spine. I have listened and understood little, for it is saying 'often there is no pain' and yet I am often in extreme pain. The diagrams used or confusing and the truth is I saved the videos but closed them, for now.
I do not want to be in this pain, too have such limited mobility, to spend more time indoors due to pain of walking in back, legs, feet and everywhere. Pain is subjective and there is no way to measure pain and so is this why most consultants are dismissive of pain?
Someday's I do not want to even move, for even my thumbs hurt and yet Tramadol is not working and I am going to no more pain clinics to have procedure after procedure, that causes more pain in travel there and back then any pain relief then I have ever gained or even been aware of.
With other conditions that I have, it is really impacted on me mentally and although not depressed I live with a low mood. I can do less and less over time and so watching a video that says or I believe it is saying that if I have stenosis I may end up paralysed and having no known tests on my neck since I was first diagnosed, how do I know I am receiving the best treatment?
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