Hi, I'm new to this site and forum, not new to arthritis unfortunately.
I was diagnosed with ulcerative colitis 30 years ago and have had surgery for this resulting in a permanent Ileostomy. UC though does not just affect the colon it can also cause joint problems too.
I was diagnosed with UC related inflammatory arthritis over 30 years ago and more recently it's been confirmed I also have fibromyalgia and ankylosing spondylitis though these have taken many years to diagnose.
The pain I have in my neck, spine and hips can be hideous, add in the fibro pain and chronic fatigue and I'm finding it all very overwhelming. Painkillers don't help nearly enough, I take paracetamol, ibuprofen and nefopam. I'm on methotrexate injections and am awaiting a decision as to whether I can have biologics (previous history of allergic reaction to infliximab) I do gentle exercises every day and swim 3 times a week but the pain, mobility issues and utter exhaustion are becoming too much. I recognise my mental health is also poor, I do take max dose of antidepressants.
I didn't mean for this post to sound so self pitying and apologies for that but I'm wondering if anyone has any tips or advice that may help me get back on track with things
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