Coming of Sulfasalazine

Damo23
Damo23 Member Posts: 6
in Living with arthritis

Hi everyone,

I have recently come off Sulfasalazine as it was making me very unwell and not helping with my pain. I started off taking 1 tablet for the first week and then increased by 1 tablet every week after until I was on 4 tablets per day. My rheumatologist advised me to stop taking it altogether because of the side effects I was experiencing. Since coming off of them I have been getting migraines, dizziness, fatigue, sore bones and flare ups increased. Has anyone experienced this symptoms after coming off of any medication?

Comments

  • Brynmor
    Brynmor Member Posts: 1,755

    Hi @Damo23

    We have some good information on sulfasalazine but sadly it doesn't include anything about the effects you may experience after you stop taking this medication. Quite a number of members have been on sulfasalazine in the past and have stopped taking it due to the strong side effects.

    I have also looked around previous conversations but couldn't see anything reported. I hope other members who have stopped taking sulfasalazine will be able to relate their experience.


    I note you asked on another conversation if there were any support groups in your area of Glasgow. Here are the results of the In Your Area search from our web site that look quite promising:


    https://www.versusarthritis.org/in-your-area/in-your-area-search-results?area=glasgow&radius=50

    All best wishes

    Brynmor

  • frogmorton
    frogmorton Member Posts: 29,793

    I don't remember anyone c/o a lot of those symptoms @Damo23 How long have you been off the sulfa?

    Your joints though and flares I suppose you'd expect to be hurting. I am so sorry you are having such a horrible time.

    What does your Dr say and do they have a plan B for you now?

    Take care

    Toni x

  • Damo23
    Damo23 Member Posts: 6

    Hi @frogmorton ,

    Thanks for the reply. I have been off the the Sulfasalazine a week now and when I stopped it that’s when the symptoms started. I am due to start biologics soon but in the meantime I was told it was due to the side effects and that I should take paracetamol which doesn’t really do much. Can it just be the case that I have withdrawals from it?

    regards,

    damo

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