Newly diagnosed - connective tissues disease

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  • Bertie_brace2022
    Bertie_brace2022 Member Posts: 32

    Hi @AndyT

    so sorry for the delay, currently in a flare and back on steroids amongst having cardiomyopathy thrown in mix, oedema also so things have been really pants.

    i read about the leading a healthy diet but tbh I already have a slight issue with food, in the sense when I do eat I have the smallest amount, I have zero appetite which has been gradually getting worse over the past 6-8 months. I don’t tend to eat much meat and try to avoid processed foods, I tend to eat more veggie!

    wow 2.5 years- that’s still an awful long time but It seems relatively quick, I’m in my 13th year now and still don’t have a definitive diagnosis apart from the UCTD, fibro and myositis! I seem to have multiple conditions (bad luck I think and I think there is more to come)

    Do you take any supplements or vitamins and if so can I ask what you think of them?

    I don’t currently but I would be interested to hear if you do

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