Advice needed re Spontaneous Osteonecrosis of the Knee

gbtbag
gbtbag Member Posts: 2
in Living with arthritis

I have osteoarthritis in both knees, and was recently diagnosed with a condition that sometimes occurs in tandem with arthritis called Spontaneous Osteonecrosis of the Knee (also known by the slightly comical acronym SONK.)

I was wondering if anyone who has or has had SONK would be willing to share their experiences and advice.

Thank you in advance

Comments

  • pmas
    pmas Member Posts: 43

    I don’t have a problem with knees, but in September 21 I was diagnosed with idiopathic AVN (avascular necrosis or osteo necrosis) of both hips, together with severe bone on bone arthritis.

    I had only been diagnosed with mild arthritis 18 months before, so progression was quite rapid. My consultant said that I was beyond steroid injections or core decompression and the only choice was bilateral total hip replacement.

    So I had my right hip replaced in February this year, and the left replaced in April - both within 11 weeks (NHS). Physio for both hips is quite intense but I’m determined to get back to normal.

    It’s quite hard to find out much information about AVN - hope someone can give you some advice/support about SONK.

  • frogmorton
    frogmorton Member Posts: 30,137

    I have no advice about spontaneous (although I have a neighbour whose son had it)

    My own daughter has ANV left hip (core decompression) and right shoulder (now replaced) as a result of chemotherapy. Surgeries at 18 and 19 respectively.

    I used this site for advice:

    https://www.avncharity.org.uk/

    If you haven't already found it it's UK based.

    Toni x

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