Hypermobility.. Fibromyalgia? In Limbo

Rainbownurse2022

Hello i am 31 years old and have had pain in some of my joints since November 2021..

I have recently seen a Rheumatologist.. who doesn't think it is Rheumatoid Arthritis.. (GP was querying this)

The consultant diagnosed me with moderate Hypermobility Syndrome and was surprised it had never been picked up before.. he told me to look at Fibromyalgia due to my chronic pain and ongoing fatigue..

He said the cartilage is breaking down on both of my knees which is where the pain can be worse.. my right hip tends to flare up for a week or two then settle.. my ankles and wrists at times too..

The pain comes in waves and tends to flare up then settle.. some of my blood tests intially showed signs of inflammation..

I wanted to reach out to others who have been in limbo regarding there diagnosis

Thank you

Poppyjane

Hello @Rainbownurse2022 welcome to the online community

You have been diagnosed with hypermobility and possibly fibromyalgia and feel in a state of limbo until it is confirmed. You would like to make contact with others in a similar situation. You have come to a safe and friendly place where we support each other with information and tips on how to cope deal with everyday life with MSK conditions.

I attach some links which I hope you will find useful , whilst they contain information they also have personal stories which resonate with you.

https://www.versusarthritis.org/about-arthritis/conditions/joint-hypermobility/

https://www.versusarthritis.org/news/2021/april/fibromyalgia-is-not-talked-about-enough/

https://www.versusarthritis.org/about-arthritis/managing-symptoms/managing-your-pain/

I hope you will browse round the community and join in with the discussions and activities. We look forward to hearing from you again soon

Take care

Poppyjane