New to hEDS

DaeRae

Hello, I'm new to this community and I desperately need to interact with people who can understand me. Im 27 and i feel so much older, im stiff (even though still hypermobile) and in so much pain constantly. Im hopping between relief (at finally having answers) and grief. If anyone is willing to chat, that would be amazing for me.

chrisb

Hi @DaeRae  

Welcome to the versus arthritis forum. 

I see that you are recently diagnosed with hEDS which makes your joints stiff and is very painful. 

You mention that you’d like to meet people who are happy to chat. I’m not sure how many forum members share your condition but certainly many will be able to relate to some of your symptoms. The members are a very friendly lot so I’m sure you’ll be made very welcome. 

One of the most popular areas of the forum is ‘chitchat’:

https://community.versusarthritis.org/categories/chit-chat-forum

another is Val’s café:

https://community.versusarthritis.org/categories/val-s-cafe

You may also find this article interesting:

https://www.versusarthritis.org/news/2020/may/living-with-ehlers-danlos-syndrome-jane-s-story/

 

I hope you find joining the forum beneficial.

 

Best Wishes

ChrisB (Moderator)