Fighting for Knee Replacement Surgery
I'm going to try not to make this post epic. If you read to the end thank you, and if you have any advice thank you again!
I'm 47, and was diagnosed as having severe osteoarthritis in my left knee in 2019, after a year of pain. The same was diagnosed for my right knee in 2020. My family are riddled with osteoarthritis amongst others. My Dad has had to have hip replacements, my cousins, uncles, aunts etc. But they tell me it's not genetic.
Initially I was told my left knee needed a partial replacement, and later on was told my right knee needed the same too. The dreaded BMI was 34 in 2019, they wanted me to reduce it as much as possible, then they'd put me on the surgery wait list.
Covid happened, everything was put on hold, both knees deteriorated quite dramatically, I have very little mobility now, which means the weight I did lose has gone back on plus some extra.
I've been told I now need total knee replacement surgery in both knees. But my BMI at 40 was too high for surgery. So I have managed to lose a bit of weight to get to 38 BMI, but have plateaued, and even with very drastic reduction in what I'm eating, I'm not losing the weight anymore.
So now their excuse is I'm too young for surgery. I've been referred back to physio (who didn't help by telling me she sees people much larger and heavier than me who've had knee replacement surgery) and been told to use a knee brace to get me mobile.
I have walked every path they've sent me down (no pun intended), ticked every box to the best of my ability, cried, begged, politely asked, sought second opinions, to no avail.
I'm in this horrible limbo of needing surgery but not being able to find anyone that will give it (unless I go private, which is well beyond my reach). My mental health has nosedived. I'm doing my best to keep my part time admin job but I'm on the verge of having to take sick leave because dragging myself in every day is getting more challenging. This sounds shocking, even to me, but I honestly feel I'd have a better quality of life if they amputated both legs above the knee.
What can I do now? Do I just wait it out? Do I try for Gastric Surgery? Can I change my NHS Trust area? I'm desperate for help please, any thankfully received.
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