New and Lost in Life (Psoriatic Arthritis)
I am a 32-year-old guy who got officially diagnosed with psoriatic arthritis about a year ago, after suffering from it since early 2020.
Ever since the diagnosis, it was all about holding on to the hope of miracle cures. Maybe the Methotrexate will make it all go away, oh that didn't go well..maybe it's Lefluemonamide is the one!.. Fast forward to today, I am on biological injections every 2 weeks and Lefluemonamide every day.
The biologics have contained the swelling, allowing me to walk a bit more. But I am suffering from nerve pain. Turns out, I got a spiled disc behind my neck which is pinching on several nerves and might need an operation.
Just to add to that, I get random swelling, like fluid buildup (but no pain), pinch pains (hands and feet), and stiffness every day.
Feels like its never ending. The consultant is not much help. As far as they are concerned, the "treatment worked" as I don't have painful swelling like before.
I am tired. I am exhausted by all this. It's affecting every aspect of my life. I am up this late due to pain. It's affecting my relationships with friends and family.
I was wondering if I could hear from others who have gone/going through the same frustration, feelings, and thoughts.
How did it affect your relationship with your partner? If possible I want brutal honesty!
I have someone significant in my life that I started to date just before the diagnosis. I don't want to drag them more into this mess.
Thank you for reading this and sharing your thoughts.
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