Dry lips and mouth

DevonDownUnder

Hello! I have CREST syndrome and Scherwins (?). Among other symptoms I have extremely dry mouth and lips. I use Vit E lip salve which helps but it is getting worse and they are sore all the time. I'm just wondering if anyone has any tips. Thank you.

Anna

Hi @DevonDownUnder and welcome to the online community,

All of our members have experience of living with some sort of arthritis, but I have to say I've never heard of either CREST syndrome or Scherwins. I looked them up on the NHS website and there was a page on Sclerodoma, with a brief mention of CREST. The Versus Arthritis website also has a page on systemic sclerosis, but no mention of CREST. I looked through both pages but could find no mention of dry lips. I wonder if any of our members have any experience of this?

Unfortunately, I could find nothing about Scherwins. Perhaps you could tell us a bit more about both conditions. Presumably they have a link to arthritis in some way?

Here's the link to the NHS website:

https://www.nhs.uk/conditions/scleroderma/

And here's the Versus Arthritis link:

https://www.versusarthritis.org/about-arthritis/conditions/systemic-sclerosis-scleroderma/

Best wishes,

Anna (Mod)

DebbieL

Hiya.

Have you tried Vaseline original petroleum jelly or pure aloe Vera lip balm?

Take care

Debbie