Being cold (pain) and having 30

Danax

It has been a long time since I last wrote to this community. I have had arthritis since I was 4 years old and it got worse over the years. Now I am in a wheelchair and waiting for a resolution from the trauma-orthopaedics.

I know that the lists are endless for surgery but my rheumatologist told me that it may be my only option to walk again. She did not prescribe treatment as my arthritis has been in remission for almost 7 years. But I was referred to occupational therapy for pain in my right hand. They only treated me with an immobilising splint for rest. I was also referred to physiotherapy but the physio told me that therapy was not necessary because of the poor mobility in my legs. He told me that I should just wait for the trauma-op to see me and then perhaps wait for an operation to replace my knees and hips. This uncertainty is making me anxious. Now that winter is coming I feel that instead of being 30 I am 60. There is not much pain but my body does not respond as it used to. My temperature regulation control is no longer working well. Here I am in my 30s with almost 26 years of illness and the anxiety is not going down.

Lane

Hello @Danax welcome back to our community.

I understand that you are waiting for a resolution from the trauma-orthopaedics and then operation to replace your knees and hips.

I have attached some links for you to have a look at:

https://www.versusarthritis.org/about-arthritis/treatments/who-will-treat-you/orthopaedic-surgeon/

https://www.versusarthritis.org/news/2021/september/arthritis-and-depression-what-you-can-do-about-it/

Do keep posting and I am sure that other members will connect with you.

All the best.

Danax

Thank you very much for the information. I have been keeping an eye on your publications. Sometimes, whatever age you are, there will always be difficult weeks. I hope this winter will not be. I am Latina, and I think that because I am Latina my mood improves quickly but our body is always wise and reminds us to stop for a second to rest. I have a 7 year old son so I don't do that much haha but we all know that those of us with arthritis go through black periods.