Another rheumatology referral
This is my first post on here - nice to meet you all.
I already have a diagnosis of osteoarthritis in my knees, greater trochanteric pain syndrome (bursitis in both hips), fibromyalgia, functional neurological disorder and rosacea.
Tomorrow I have another appointment with rheumatology because I have started to develop what I believe to be psoriatic nails. There is a family history of PsA, I have some limited skin flare ups which could be psoriasis but they are not constant - I have patches on my scalp which are hard to see, my belly button flares up occasionally and my legs are very scaly and itchy but this is always passed off as dry skin. This referral was made by my GP due to images that I sent in of my nails which are bending(clubbing around the tips of my fingers), ridged, lifting from my nail bed and becoming thickened.
When I had my diagnosis of fibromyalgia, I had multiple MRIs and ultrasounds of my back and pelvis, I have had CTs of my head and MRIs of my spine due to the FND and ultrasounds on my knees for the arthritis. I asked the last consultant I saw if she thought it was PsA due to all off the symptoms but they refused to acknowledge the issues on my scalp as psoriasis as it cannot easily be seen (I have a lot of hair!).
Anyway, I am just wondering what diagnostic steps to took for you to get anywhere....
I am almost 37, I don't want to wait until my 50s (like my mom did!) to be able to get a diagnosis because I know that early intervention is key for sustained positive outcomes.
I also believe that I have Raynaud's - as I type this I am sitting in a thick blanket with a heat pad on in a relatively warm room but my hands and feet still feel like ice and they are so very painful!
Thank you for reading war & peace, I look forward to reading your replies.
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