Interested in experiences on Apremilast, Otezla?

sw8689
sw8689 Member Posts: 6
in Living with arthritis

Hi everyone, I’m new to your forum and very happy to be here. I’m looking for other’s experiences on Apremilast for Psa. I can find all sorts of medical info, but I’m really wanting to hear personal experiences if anyone will please share I would greatly appreciate it.


Comments

  • frogmorton
    frogmorton Member Posts: 30,322

    Hi @sw8689

    Sorry I haven't tried this one, but you might want to look at these threads whcih come up when you do a search. (top right of the page magnifying glass icon.) Might be worth putting in the generic name too in case others have mentioned it under that name.

    https://community.versusarthritis.org/search?query=apremilast&scope=site&source=community


    Best of luck and please do let us know how you get on.

    Toni x

  • Caleb1981
    Caleb1981 Member Posts: 33

    Hi @sw8689

    I was just looking through here for experiences with Apremilast, but like you, I found there’s not a lot.

    I started taking it on 9th November 23 and initially, all was well - usual gastric upset and headaches but then soon settled. Unfortunately after 5 week I started to feel really nauseous after taking it, and this feeling became persistent throughout the day - the thought of food just made me feel sick. I also noticed odd heart flutters ( same as I had with Sulfasalazine). I contacted rheumatology when I started to notice the appearance of small itch spots, all over my body. Rheumatology advised that I stopped it - overnight, the side effects stopped and the rash passed with a few days.

    Ignoring the above, it was starting to control my PsA.

    Just waiting for the next steps.

    Interested to hear how you got on with it?

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