Rheumatoid arthritis

Embp

Hi, I'm new here and have joined as I really need some support with a diagnosis of RA but feeling like I have such a lack of information. I'm 45 and was started on hydroxychloroquine last August. It has helped enormously compared to where I was but things aren't great by any standards. I've had 2 sets of ultrasounds my hands, the 2nd showed no inflammation so the rheumatologist doesn't want to introduce any further medication. I have said that even when my hands aren't inflamed or painful, the rest of my joints are awful. I've not had an mri as of yet. I've had a really awful flare up recently and have started with headaches starting in the base of my skull and just generally feel really miserable. I have a review next week and am trying to work out how to approach it and what to say. Sorry as that's lots of information for my first time here. Emily x

chrisb

Hi @Embp (Emily),

Welcome to the versus arthritis forum. 

You have RA and whilst your current medication has helped to some extent you still experience pain and headaches which understandably make you feel down. You have an imminent review and would like to hear from any forum members who might be able to offer some advice that would help you get the most out of your appointment. 

Well you’ve definitely come to the right place to ask for input as there are many members who will be able to relate to your situation. 

Whilst you await feedback, you may find these links useful:

https://www.versusarthritis.org/about-arthritis/conditions/rheumatoid-arthritis/

 

https://www.versusarthritis.org/about-arthritis/managing-symptoms/managing-your-pain/?_ga=2.114934212.292596339.1683808276-975178968.1599145417

 

If you browse the community website you should find a number of relevant recent conversations that you may find it useful to join in with.  

I hope you receive some useful feedback and that your upcoming review has a positive outcome. 

Best Wishes

ChrisB (Moderator)

Woofy

https://community.versusarthritis.org/discussion/60189/rheumatoid-arthritis

Hi Emily. Sorry you are feeling so rough. I have been where you have, except Hydroxychloroquine didn’t do anything for me. Ive since been on Sulphasalazine but still no help. I was given steroids to try to dampen down he flair ups I’ve had. The pain at times has been unbearable. Last week everything changed. My new ultrasounds showed significant changes. And now I have been put on Methotrexate. I still don’t have a high rheumatoid marker, but I think everyone is different. It’s been a long old struggle. What I just wanted to say, was don’t give up. They will need to try lots of avenues until they find the cause, and get you on the correct meds and care plan. Good luck. X

pamjit78

https://www.walesonline.co.uk/news/real-life/mum-claims-shes-cured-chronic-25724906.amp

hi I can help u x

PeterJ

Please note that diets and complimentary medicines may work for some people but not for everyone