I joined this site in 2012, after being newly diagnosed with RA at 21. I got under control with Sulfasalazine (Spelling ??) And for the most part had a long period of manageable pain.
In October last year, after a spate of different illnesses, the flare up returned and has been on and off really bad, and resulting in a particuarly bad flare from the end of March.
Due to being in some what of a 'remission' my treatment seemed to come to a standstill (probably not helped with covid) but i was continuing to take the sulfa and had blood tests as and when the GP surgery called me. Before the flare up, at an appt with my GP in July 2022, he noted i should have seen my consultant by the start of 2022, and advised i should try and get an appt. I did try, but admit i wasn't getting in touch often as everything was ticking over nicely.
Since October i have fought and fought for appointments, and extra pain relief. I managed to see nurses in October who give me a steroid injection near my thigh which did settle it down. They also upped my sulfasalazine dose and said i'd get an appt with my consultant. Again i heard nothing, but when it got particuarly bad at the end of March i managed to find a number for his secretary and she got me in within a week. He suggested then that it would possibly need to be a knee replacement, but would need up to date xray (did this whilst at the hospital) and a full body MRI to check what is going on as due to the way i am walking i am getting mega pain in my bank and spine. He also said he would refer me for physio.
I had my appointment on the 14th April, and i appreciate that it's not that long ago, but how long should i be waiting? Every day i don't have an appointment i am defeated. I get everything is understaffed, but i can't remember ever struggling this month.
Pain wise it is constant (I did manage to get another steroid injection last week, which has eased but not as well as the one in October) and the pain killers (Codiene and Naproxen) from the doctors don't seem to touch it. Do you have any suggestions on what i can ask for?
I am also unable to walk normally on my knee and my foot seems to point to the right and i can't get it to walk 'straight' do you have any suggestions on the best knee support i should be using?
I sometimes have to travel long haul for work which doesn't help and had a trip end of April, so i'm not sure if that has affected it more than usual also.
I have recently weaned off antidepressents also and i feel like i did that, and then the pain kicked in and i'm not dealing with it as well as i would.
Any advice and support would be greatly appreciated, and sorry for the long post.
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