Looking for support

luludean

I have various forms of arthritis . And, as many misdiagnoses.

I am unhappy with my rheumatology department.

I have various health problems ,under several hospital departments, but, only the rheumatology department makes me feel totally useless. There is no warmth there. I have asked to chsnge consultants but, have heard nothing.

on no medication now , Adilamumab caused repeated uti s

erecept caused chest pains and nose bleeds.

I also have heart problems.

SharminB

Hi @luludean

Welcome and thank you for joining the online community 😊

I'm really sorry to hear what you're experiencing. As tough as the situation seems, I'm glad you have taken the step to ask to change consultants. You can also talk to Patient Advice and Liaison Service (PALS) and VoiceAbility, if you would like further support with this.

If you do feel like any of your symptoms from your arthritis are getting worse, we'd suggest calling 111 for further support. And you are more than welcome to call the Versus Arthritis helpline and talk to an advisor for further information and support.

https://www.nhs.uk/nhs-services/hospitals/what-is-pals-patient-advice-and-liaison-service/

https://www.voiceability.org/

https://www.versusarthritis.org/get-help/

Best wishes,

Sharmin - Mod