Im Tilly. I have PsA. Initially it started with plantar fasciitis for about 3 years which I merrily ignored thinking it was just one of those things. Then I started to get pain in my hip. My dad has PsA so I started to put 2+2 together. It took the GP 6 months to make the referral to rheumatology. Who put me on methotrexate and watched me deteriorate fast for the near year. I had to transfer my care 2.5 hours away to be taken seriously. I’ve now been on methotrexate for 18 months and just started Humira.
For me this disease is really aggressive in 18 months I have gone from hip pain and plantar fasciitis to all of my toes, ankles, hips, back, shoulders, neck, wrists and fingers. A lot of swelling and ridiculous fatigue.
Im living in the lounge, was walking with a stick but now I’ve had to buy a wheelchair. I’ve lost friends and family and my husband is the only support I have and he is struggling to manage. I’ve lost my job because I’ve been off sick so long.
I know there are plenty worse off and I am not looking for pity or even solutions I just hope to be heard. I haven’t had an easy life, but this is the first time I have broken.
thank you for letting me vent
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