Primary Sjogren's syndrome

Quinni Member Posts: 3
edited 28. Nov 2023, 14:10 in Living with arthritis

Hi! It's taken three years to get an answer but yesterday I finally got a diagnosis. Equally relieved and terrified! I can't find anything in my local area I can join or people I can talk to about all this.


  • noddingtonpete
    noddingtonpete Moderator Posts: 826

    Hello @Quinni and welcome to the Community. We are a friendly and supportive group and I hope that will be your experience as well.

    I understand that you have been diagnosed with Primary Sjogren's syndrome and looking to connect with people. There are some conversations on this in our Community, have a look at the following search.

    you could also try and see if there is a local group near you

    Please keep posting and let us know how you are getting on.

    With very best wishes

    Peter (moderator)

    Need more help? - call our Helpline on 0800 5200 520 Monday to Friday 9am to 6pm

  • frogmorton
    frogmorton Member Posts: 29,016

    Hi @Quinni

    I see you've finally been given a diagnosis and it's Sjogren's.

    Now I know not a lot of us have it here - quite a few do though alongside another condition, but we do all understand pain so I hope you'll decide to hang around. We can still support you.

    Take care

    Toni x

  • Quinni
    Quinni Member Posts: 3

    Thank you, this means a lot. Feeling a bit lost tbh! There isn't a local group outside my work hours unfortunately. Hopefully things will become clearer when my blood tests come back conforming everything, I hope!