Hello again a few questions and thanks for any replies & I hope you are doing OK today
Hi everyone, hope you aren’t in too much pain today.
I’ve gone down the private route to find out what’s wrong with me, basically I’m in immense pain all of the time it’s got worse, it started suddenly in March 2022. I now wish I had gone on the NHS because 14 months later I’ve just been sent round in circles. My friend who is a pain consultant has told me that the Private Rheumatologist did maybe 5 percent of what she should have done for me. She never even touched me. My friend has RA which is what my doc thought I had so she does know what she’s talking about. I’ve had an MRI done on one wrist even though my pain is in all my joints and have told everyone this. Then out of the blue this week my private healthcare provider emailed me a short email saying I could not be covered now for anything to do with arthritis or RA because I have a long term condition and they treat people with acute conditions. Weirdly it was the same day as me and my friend came to the decision that I would go down the NHS route if I could. My inflammatory markers are high. I cannot hardly walk in the morning and walking is hard all day. I religiously do hand wax baths every day. I cannot close either of my hands. The pain is terrible as I’m sure all of you know. Sorry for rambling I’ve sent a letter to my GP in the hope that I can be seen by an NHS Rheumatologist. I had a question to ask on average how long would I expect to wait to see an NHS Rheumatologist? I live in the West Midlands. Can anyone tell me their story of being diagnosed with RA? Or any other Arthritic condition? I’ve been signed off work all this time & I just want to get back to some form of me whether I have RA or not. Could you tell me what happens at an NHS Rheumatology Appointment?
Thanks for any replies & I really hope you are all doing well today or whenever you read this.
Much love Julie x
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