I was wondering if anyone has AnkylosingSpondylitis and how they manage it?
I was given biologics first infusion caused bad side effects and second time infection after infection and now on my 5th infection and not managing very well, I got diagnosed last summer.
I don’t have a good rheumatologist team they are not understanding at all, the Gp is not helpful if I ever see him and doesn’t understand.
In less than a month I have another infection, 5 infections and third lot of antibiotics, yes I need treatment but they have given me Golimumab which is a new medication they told me and don’t know the long term side effects.
On the leaflet it says if repeated infections then I may not be prescribed, they don’t listen to me and seem to be clutching at straws.
I am in the uk.
What can I do?
I can’t keep getting infections and can’t keep avoiding people which I am doing right now.
I am 64 and it’s very upsetting not seeing my daughter and two little grandkids.
Any advice as talking to rheumatologist they say I have to have this, I have no choice in the matter.
I am looking at changing what I eat, acupuncture and lady on the helpline really nice said acupuncture and omega 3 fish oils.
anything else please?
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