Psoriatic arthritis
Hi everyone!
Wee bit of backstory lol formally diagnosed in December last year after being on a waiting list for two years to see Rheumatologist. Given Methotrexate which gave me some nausea for the first few weeks but eased off, psoriasis was clearing up and I was starting to notice a bit of a difference in my joints. Had a routine inflammation markers blood test done and they were at 83 so doc decided to take me off the methotrexate and move Sulphasalazine. Have never felt so sick in my life as I did on that medication. Constant nausea, unable to sleep, sweating, shaking and just no energy. Had to stop taking it and joint pain and psoriasis has come back with a vengeance. Have phoned my rheumatologist secretary twice and keep being told I'm on a waiting list for a telephone appointment and to ring the rheumatologist nurses but they never call me back. Can't even be prescribed anti-inflammatory meds and was told to just buy over the counter ones that don't even touch the sides 😔
Sorry to rant but just feeling very deflated and in pain.
Comments
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Hello @Erinm84 and welcome to the online community
You have Psoriatic Arthritis and had settled into using Methotrexate but your doctor changed you to Sulphasalazine which caused you a lot of problems You have now stopped taking it but have not been prescribed a replacement yet.
There is no need to apologise for having a rant. This is a safe place to have a rant , a cry, a moan. We all have days when we need to let off steam and so we know how you feel. Numbers of our members have tried various medications until they find one or a combination of drugs that suits them. Meanwhile keep trying with the Rheumatology nurses.
I attach some links which I hope you find helpful
We are a friendly supportive group and we hope you will join in with us and we look forward to hearing from you again soon.
Best wishes
Poppyjane
If it would be helpful to talk to someone ring the Helpline 0800 5200 520
Monday - Friday 9.00a.m. - 6.00p.m.
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