Cimzia

GailLouise
GailLouise Member Posts: 2
edited 26. Oct 2024, 17:37 in Living with arthritis

Hello 🙋🏻‍♀️

I am new to the forum, hoping to hear of people’s experiences with RA and Cimzia medication.

I was diagnosed with RA in 2019 at the age of 29. I was prescribed Methotrexate which helped keep me mostly symptom free for almost 4 years. In November 2022 I stopped taking Methotrexate as I hope to soon start a family. I was prescribed Sulfazalizane which had absolutely no effect and I went into a severe flare up. Unfortunately the rheumatology team I’m under were not helpful or understanding, instead insisting I persevere and wait for things to improve. They didn’t and after 8 months I was finally prescribed Cimzia.

From the first dose my RA symptoms disappeared and I’ve been in remission for 5 weeks. I’ve also experienced no side effects - except the fact that I have missed my period. I have read that menstrual disorders/disruption is listed under uncommon side effects (less than 1 in 100 people), so I was wondering if any ladies also taking this drug have experienced the same thing or something similar? I have taken 2 pregnancy tests, 5 days apart and both were negative. Given that I’m taking this medication with the hope of conceiving, I am now worried it could prevent me from doing so. I will of course talk to my GP & Consultant about this, but it would also be helpful and reassuring if anyone is willing to share their experiences of Cimzia.

Many thanks

Gail x

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Comments

  • noddingtonpete
    noddingtonpete Moderator Posts: 1,239

    Hello @GailLouise and welcome to the Community. We are a friendly and supportive group and I hope that will be your experience as well.

    I understand that you have been prescribed Cimzia (Certolizumab pegol) but concerned about conceiving. I agree you definitely need to talk to your GP/Consultant but have a look at the following, particularly the last paragraph.

    https://www.versusarthritis.org/about-arthritis/treatments/drugs/certolizumab-pegol/

    and also the following search results form this community Cimzia there are a few on Cimzia and pregnancy.

    I hope that you can get some answers and I am sure others on here will connect with you to share their experiences as well.

    Best wishes

    Peter (moderator)

    Need more help? - call our Helpline on0800 5200 520Monday to Friday 9am to 6pm

  • GailLouise
    GailLouise Member Posts: 2

    Thank you, Peter, for your very kind message and the provided links.

  • bethhhwilliamsss
    bethhhwilliamsss Member Posts: 2

    Hello, how are you?

    Did you manage to find out if Cimzia has delayed your period? And what have you been able to do about it?
    I also have the same problem and have only had 1 period since starting Cimzia 7 months ago.

    Many thanks

    Beth :) x

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