Hello, I am fairly newly diagnosed with RA (March 2023) I’m not yet on stable medication and my steroid course of tablets and subsequent steroid injections have now worn off. I am injecting 20mg of methotrexate weekly however I’m only on week 2 of this and I’ve been told to not expect any improvement in pain & swelling for 12 weeks! That’s if it works!
I’ve slowly being getting worse and worse since my steroid injection 8 weeks ago and over the last week the pain & swelling has returned to pre diagnosis levels. Along with extreme fatigue, muscle weakness, constant nausea, loss of appetite and overall feeling of being unwell.
My issue is me and my wife have 3 young children, a 2 year old and twin boys aged 5 months. I am really struggling to be able to look after the babies and do the chores around the house. The toddler I can deal with but the babies and household chores are just so physically demanding. I can’t lift the babies, change their nappies, feed them their bottles or even sit on the floor to play with them. This means that my wife has to look after then 24 hours a day. I also can’t do any chores around the house including cooking.
My question is, is there any home help or home support that I’d qualify for suffering from RA. I have been awarded PIP & a blue badge, but I really need some support around the house, cooking, cleaning, laundry, caring for the children etc. As my RA has destroyed my body physically I can’t even open milk bottles or wash my hair!
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