Just been diagnosed with Fibromyalgia, I would like to make new friends

T_Tango

Hi,

I have just been diagnosed with Fibromyalgia, even though i have felt symptoms for nearly 2 years before this, I would like to make some new friends, I am in my 30s.

I would like to chat to people and see if they go through similar things to me and symptoms. It is horrible as it feels like I am getting more bad days than good.

All the best ☺️💫

Cassienova

Hi Tango,

Really sorry to hear your condition and how it makes you feel.

I was diagnosed two years ago at the age of 25 with inflammatory arthritis and I 100% get the bad day cycle.

Have you found ways to ease your flare ups?

T_Tango

Hey:)

Thank you. I am also really sorry to hear that you have that!

Its difficult to find hope and ways to just keep going isn't it. When everything seems to just be so much harder to do and deal with.

Unfortunately no ways of managing yet! It's just taking over me.

How about you?? Have you found anything??

Cassienova

I completely understand, it makes it even worse when people disregard you for being so young.

I rotate three ice packs in my freezer and try to exercise as much as I can. I know it's difficult but always keep querying your condition to your specialists so they can offer you different medications and advice. I have found keeping a medical journal handy for appointments and keeping track of how much medication I take and pain scales.

T_Tango

Yea I have had that a lot! I get people saying you look fine though, as if I am just moaning for the fun of it. Lol.

Oh okay so ice packs? Well I am doing heat. So the complete opposite. I don't know actually what I am meant to use.

At the moment I am not on any medication from the doctors as I have refused as they offered me antidepressants and I don't want to go on them. So at the moment I have nothing getting rid of the pain ! And that is hard.

I have started cod liver oil. And I pray it helps!