Newbie hoping for some support
Just found this lovely group and let me introduce myself.
I am 68 having been initially diagnosed with RA at 28 yrs old after the birth of my son and a horrendous dose of flu.
Back then i was given Naproxen and not offered RA clinics so i carried on with no great issues until i was 2013 when i needed surgery for diverticulitis which didnt go well as i became very poorly.
Just as i was recovering from that the RA kicked off big time in my feet and hands. I was eventually referred to my local RA clinic where i was put on methotrexate which after nearly ten years has given me lots of rheumatoid nodules! ( apparently a side effect of MTX)
My symptoms etc dont exactly match up with typical RA i dont think. More palindromic. I get severe tendon sheath pain in one joint one day moving on to another the next. This will go on for a couple of weeks then stops. Rearing its head again maybe a month later. Maybe not. I have managed to snap a tendon in my thumb from this.
I am not impressed with the RA clinic! I havent seen my so called consultant for years and always see the nurse practitioner every 6 months who really doesnt give me any advice that i dont really know. ( i am an ex nurse practitioner) She is more keen on knowing how painful and stiff i am in the mornings! I keep telling her i am not!
Getting in contact with the clinic is nigh impossible. Calls arent answered. Luckily my gp is supportive but cannot override the RA clinic care.
A couple of weeks ago i gradually... over the day started to ache all over. The pain eventually settled in my ankle. It was red swollen and very sore. I couldnt walk on it for a few days then it slowly subsided. A week on and its still swells up and aches in the evening. Is this a more typical RA flare?
I am worried as i am a very active person and dont want this to slow me down if i can help it
Thank you so much for reading my long post
- All Categories
- 2.3K Welcome
- 17 How to use your online community
- 30 Help, Guidelines and Get in Touch
- 40.4K Our Community
- 670 Chat to our Helpline Team
- 8.7K Living with arthritis
- 2 Want to Get Involved?
- 53 Hints and Tips
- 221 Work and financial support
- 390 Young people's community
- 7 Parents of Children with Arthritis
- 40 My Triumphs
- 132 Let's Move
- 24 Sports and Hobbies
- 13 Food and Diet
- 256 Coronavirus (COVID-19)
- 16 Community Feedback and ideas
- 333 Chat and News
- 29 Val's Cafe
- 269 Chit chat
- 11 News
- 4 Tails From The Cafe