I have ankylosing spondylitis I got diagnosed 18 months ago, it was a shock I had not heard of it, I am in my late sixties.
I am struggling with the Biological treatment, I had two infusions of Inflixmab, had eight weeks of Folliculitis, still getting spots everywhere, have left scars, have to use cream from changing faces to help, have depression and anxiety from all of this, have Alopecia and tinnitus as well, not managing at all, rheumatology are not easy to talk with have lots faith in them and they have with me but it’s not my fault I react to everything, i have had three chest infections, two chest infections and this skin infection, amongst the other side effects I had straight after the two infusions.
I am allergic to most antibiotics and can only take two which this year I have had so many I will build up a tolerance and I won’t be able to have them.
the Folliculitis is down below and I have an abscess there as well as cysts now, my head has boils from the Folliculitis, I haven’t been able to wear a bra since the Folliculitis started and now the team want me to start a new biologic called Golimumab which common side effects are skin rashes and ingestion and high blood pressure both of those I have had.
I live in Northumberland uk and hardly any support from a medical team that is supposed to help.
Cananyone help or tell me if I should change hospitals?
so many things have been messed up with this hospital but the things are going it could be the same at other hospitals, would like people’s thoughts on what I should do please
- All Categories
- 2.3K Welcome
- 17 How to use your online community
- 30 Help, Guidelines and Get in Touch
- 40.4K Our Community
- 674 Chat to our Helpline Team
- 8.7K Living with arthritis
- 2 Want to Get Involved?
- 53 Hints and Tips
- 222 Work and financial support
- 390 Young people's community
- 7 Parents of Children with Arthritis
- 40 My Triumphs
- 132 Let's Move
- 24 Sports and Hobbies
- 13 Food and Diet
- 257 Coronavirus (COVID-19)
- 16 Community Feedback and ideas
- 333 Chat and News
- 29 Val's Cafe
- 269 Chit chat
- 11 News
- 4 Tails From The Cafe