Possibly Having to Retire on Medical Grounds
Hi everyone, this is my first post & I apologise for it's length but I really don't know who else to talk to without being judged.
I'm 53 and currently having tests for RA. I've had Fibromyalgia, Lupus and Sjogrens Syndrome since I was about 18 (but only diagnosed in my early 30's) and I've had hEDS since I was a child (again only diagnosed in my 30's).
I work full time at the moment (from home as I could no longer work in an office), and my job is predominantly typing. To cut a long story short I went off sick with work related stress, and this progressed to a full blown autoimmune flare. However, this flare was different as it's now receded but I've still been unable to close my hands due to pain & stiffness, and the joints in my thumbs, index and middle fingers of both hands are so painful I can't even touch them. They also throb & hurt even without touch (as though I have a knife being pushed into them). I'm also having the same problem in my toes.
My employer hasn't been the most supportive, and talks over me whenever we have a conversation. But I'm now at the stage where I think I'm either going to have to reduce to part time as I'm pretty much useless before lunch time, or even medically retire and see if I can claim my pension early (accrued with a previous employer). I receive standard rate PIP for daily living and enhanced for mobility (I'm looking into appealing the daily living).
I have another telephone meeting tomorrow & I'm going to broach the part time, but I think they've just advertised my job online, so I think it's going to be a non starter.
I've read lots of posts on here, but wondered if anyone has been in a similar position to me, if so, what they found was the best solution for them?Or even any suggestions if there are avenues I might not have thought about?
I feel so very helpless at the moment and I'm trying not to say too much to mum as she worries so much.
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