Quitting gluten & arthritis
Hi everyone, I've seen a few other threads about arthritis and gluten on here but I wanted to share my recent experience and i'm keen to hear from others about whether quitting gluten has helped with RA flare ups and pain.
I've been on Agemvita for around 8 months. It made a difference soon after taking but then kind of plateaued at a level I would call unbearable. When I went for my 6 month check up I was feeling pretty desperate to change to a different biologic bc I was sure my meds weren't working well. But, to my surprise, the ultrasound and bloods showed that clinically i was doing "well". This was hard to swallow bc on a day to day basis I was still struggling with terrible fatigue, constant wrist pain and swollen wrists. At the time, the consultant said that the pain I was experiencing was probably 'pain syndrome' and prescribed me amitriptyline 10mg which made no difference at all. ANYWAY, a few weeks ago I stopped eating gluten (out of desperation and seeing things on the internet) and 4 or so days later the difference was huge. The fatigue and constant pain are 50-70% reduced. My wrists look normal for the first time in over a year...
I've always been sceptical about the power of diet for inflammation (and I got so fed up with random people giving me spurious food advice) and I also don't have gastro symptoms most associated with gluten intolerance. However, the change has been dramatic. Even as far as waking up in the morning and just not being immediately in pain.
When I went back to hosp consultant this week, they called my wrists a 'success story' but literally three weeks before I was feeling like i was about to jump off a cliff bc of wrist stiffness...
The idea of being GF is deeply unappealing to me. I'm still >3 weeks into a strict GF diet and haven't even tried eating out. I'm interested to hear anyone else's experience of the link between gluten and RA. My aunt has celiac disease but I contacted my gp and he said he said that i had been tested for CD in march and that was negative.
Anyway - am keen to hear if others have stories - either for or against eating gluten and its impact on RA. It's still possible my dramatic improvement is related to something else - or just a coincidence...
- All Categories
- 2.3K Welcome
- 17 How to use your online community
- 30 Help, Guidelines and Get in Touch
- 40.4K Our Community
- 670 Chat to our Helpline Team
- 8.7K Living with arthritis
- 2 Want to Get Involved?
- 53 Hints and Tips
- 221 Work and financial support
- 390 Young people's community
- 7 Parents of Children with Arthritis
- 40 My Triumphs
- 132 Let's Move
- 24 Sports and Hobbies
- 13 Food and Diet
- 256 Coronavirus (COVID-19)
- 16 Community Feedback and ideas
- 333 Chat and News
- 29 Val's Cafe
- 269 Chit chat
- 11 News
- 4 Tails From The Cafe