Saying Hello 👋
Hi all, I'm not new to having arthritis as was diagnosed with Juvenile Chronic Arthritis at 18 months old. It eventually became Juvenile Idiopathic Arthritis. I had many years on Methotrexate, but took myself off it in my teens as I started to struggle with how much time I was missing off school due to appointments and blood tests and being poorly as the Methotrexate affected my immune system, which meany I constantly picked up bugs.
I've had plenty of steroid injections in my knee and fluid being taken off them, had my time on crutches during flare ups and then things seemed to settle for a while. My right wrist is very twisted and deformed, so I taught myself to be ambidextrous as I couldn't do anything other than write with my right hand. I use scissors and used to play racket sports with my left hand.
Unfortunately both times after having my children I have had flare ups and are currently having a flare up after my second child. I was started on medication after my first child, but once I went back to work trying to keep up with a young child, work and hospital appointments just never happened. I'm now waiting to try get an appointment to see if medication can help me again as my flare up is massively affecting my left wrist, and that's meant to be my good one, shoulder, neck, jaw and knee.
I've never found a support group before as when I got referred to adult rheumatology I was always made to feel like I shouldn't be there. Would be lovely to chat with others that have experienced similar to me and how they cope.
Thanks for listening 😁
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