Polymyalgia and Oesto arthritis

VALPOL
VALPOL Member Posts: 2
edited 11. Sep 2024, 10:13 in Living with arthritis

Just joining the Community to see if I can get advice/help from you as the Medics ( Both NHS and Private Rheumatologists only seem to be able to diagnose but not help much.) 🙄

Comments

  • noddingtonpete
    noddingtonpete Moderator Posts: 1,239

    Hello @VALPOL and welcome to the Community.

    I understand that you have polymyalgia and osteoarthritis. There are many members on here with similar so I am sure they will connect with you and share their support and experiences, but in the meantime have a look through the following couple of links.

    https://www.versusarthritis.org/about-arthritis/conditions/polymyalgia-rheumatica-pmr/

    and

    https://www.versusarthritis.org/about-arthritis/conditions/osteoarthritis/

    Please keep posing now you are here and once again welcome.

    Best wishes

    Peter

    Need more help? - call our Helpline on0800 5200 520Monday to Friday 9am to 6pm

  • Ellen
    Ellen Moderator Posts: 1,841

    Hi @VALPOL

    I did this quick search for you on Polymyalgia

    https://community.versusarthritis.org/search?domain=all_content&query=polymyalgia&scope=site&source=community

    There are quite a few people who also have PMR there.

    Best wishes

    Ellen.

  • jenban
    jenban Member Posts: 1

    Four years ago I had the first of four blood clots in the same leg, was put on Xarelto for life. One year ago, went to my dermatologist, for my normal skin check. She found a nodular melanoma, which was removed with a wide local excision within two weeks, dont hang around! Means having three monthly skin checks, lymph node scans (one of which identified a large nodule on my thyroid) and PET scans. At my last PET scan two months ago doctor came out with scans in his hand, said no cancer, but floridar arthritis found in my joints. Oh boy, did the radio active stuff antagonise this, was in agony. Went to see local gp who prescribed, anti inflammatory drugs, which didnt help! Just been to see Rheumatologist, who has done blood tests, which confirmed his diagnosis of polymyalgia rheumatica. Initially took two tablets of 16mg each, for four days, absolutely wonderful, stopped that throbbing pain, tapered it down to one a day at which point it came back with a vengeance. Just spoken to him and he said to keep on taking them and return to him in 3 weeks!Meanwhile had an episode of syncope, went completely unconscious, husband caught me, now being sent for brain scan, what more can happen to me!

    Revards

    Jennie

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