Enteropathic Arthritis & UC

Mckerz
Mckerz Member Posts: 5
edited 28. Nov 2023, 14:11 in Living with arthritis

Have tried Infliximab, Upadacitinib & next Sulfasalazine. Concerned about side effects of Sulfasalazine… any advice?

Comments

  • noddingtonpete
    noddingtonpete Moderator Posts: 1,243

    Hello @Mckerz and welcome to our friendly and supportive Community.

    I have put the link in below from our website on sulfasalazine which has some useful information. You might like to have a look around the website for other info as well, it contains info on arthritis, treatments, hints and tips.

    https://www.versusarthritis.org/about-arthritis/treatments/drugs/sulfasalazine/

    Please keep posting and let us know how you are getting on.

    Best wishes

    Peter

    Need more help? - call our Helpline on0800 5200 520Monday to Friday 9am to 6pm

  • Mckerz
    Mckerz Member Posts: 5

    Thank you @noddingtonpete - I would really love to hear from the community about their experience of Sulfasalazine and insomnia (as a side effect) if any? Does it go away?

    I am 41, active (ex dancer) and my diagnosis has really shocked me. Right now, in the morning my movement is ok, maybe a bit tender but come 5/6pm I am struggling to walk or use my arms. The pain and swelling moves from joint to joint & my fingers look like purple sausages. So lovely.

    Updacitanib worked so well with my pain for about a month but I couldn’t continue with the acne that it caused. I do understand how vain that sounds & was embarrassed to admit this to my Rheumatologist. In a nutshell, lumpy, spotty & painful skin will affect my job so had to come off it.

    I’ve been told that Sulfasalazine “Probably won’t work for you” Why I was told that is beyond me.

    is Enteropathic Arthritis not as widespread? I haven’t seen much about it here.

    Thank you x

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