Help please...... pain relief.
I have been diagnosed with PsA for a number of years and have been on several biological drugs ( enbrel humira etc) currently on Consentyx. Originally I was given longtec and shorter which helped. During the pandemic my entire body felt it was seizing up and my GP ( mostly over the phone) increased my longtec to 2 x 40mg a day. I continued to become worse I finally paid to see a consultant privately and we realised it was a fibromyalgia flare ( new to me)
Luckily I have managed to keep these flares to a minimum through sheer mental positivity, it works for me.
However the doctor started the reduction in both long and shortec This was fine for a while but now I am being bought down completely. My new GP .... I had to move and buy a much smaller bungalow to cope) just keeps saying she will not prescribe them. The consultant from the pain clinic wrote and told her to keep my dose as it is now....25 mg long. 10 short.
I am really struggling on this amount. The arthritis affects my hands shoulders feet and hips. I have already lost my home, lost any form of social life, struggling with basics like getting up and washed. The isolation has been devastating, I am 62 yrs. I recently put myself forward to do some volunteering in my background field ( legal) I am desperate for this because I see no point in a life when just getting dressed is all I can do.
My GP is now going to take this pain relief away...... I have never met her ( new address) just over the phone. I cannot believe they would rather leave me housebound than give this pain relief. Not once has she asked how I'm coping and is not interested, she refuses to take note of what the pain consultant says and told me if I didn't like it go somewhere else. I know all about different creams lotions relaxing techniques etc etc but the reality is my joints are destroyed and I need help.
I don't know what to do...... I have reached my limit and sense I am about to be left to literally rot in my house. My family live abroad and all my care is down to myself.
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