just back from hospital and feel defeated and unsure where to start

cvm
cvm Member Posts: 2
in Living with arthritis

Hi everyone ,

This is my first post.Ive been diagnosed this year with PTSD, Fibromyalgia,Hypermobility specrum disorder,sjogrens and depression.The rhematologist has just told me that my ANA blood test was negative so i cant have sjogrens and its "just" part of the fibro.Ive gone from managing dental practices to not being able to do a receptionist job in one.Where do i start managing the fibro .Is it diet and excercise and keep taking the antidepresents and hope it helps?

Sorry for the long post I just feel a bit lost.Ive got hair loss gum issues severe widespread pain and fatigue tmj and migraine too.

Comments

  • Woofy
    Woofy Member Posts: 360

    hello.

    Sorry you are feeling deflated. I just wanted to say, when I was diagnosed with RA couple of years back, it was a complete shock. I am still trialing different meds, and as yet the hospital haven’t found the magic formula. All I would say is do as much homework on your condition, and try to find a local support group if you can. I am sure someone with similar condition will be on here to give you some advice. Stay strong.

  • Ellen
    Ellen Moderator Posts: 1,851

    Morning @cvm welcome to the online community.

    You do sound to be having a really tough time I can 'hear' it in your post.

    The good news is you are absolutely not alone we have a lot of members who have fibromyalgia here and Woofy is right getting reliably informed is a real help.

    I am going to attach a couple of links for you t read/look at:

    https://www.versusarthritis.org/in-your-area/in-your-area-search-results/versus-arthritis-online-fibromyalgia-support-group/

    https://www.versusarthritis.org/about-arthritis/conditions/fibromyalgia/

    My advice is to keep posting keep reading and do not lose heart. Being diagnosed with a long term condition is a huge thing to get your head around.

    Best wishes

    Ellen.

  • cvm
    cvm Member Posts: 2

    Thank you Ellen I have emailed them ,and I will take your advise .

  • Skinny Keef
    Skinny Keef Member Posts: 1,149

    hi @cvm, oh dear you do have a lot going atm.

    I can sympathise. I have a lot of what you listed too. Especially the PTSD/depression and migraine.

    I am currently in the process of switching my anti inflammatory (naproxen) as it definitely make my depression worse 100%. So if you take similar you could look at changing that. I will let you know what they put me on.

    Migraine from neck arthritis currently steals about 40% of my time, if not more. I am forever typing the words “migraine city” on Val’s cafe to let other visitors know that they probably won’t be hearing from me for 24 hours. I never used to suffer with them but the last four years has been terrible. Not sure there is much you can do about them, although now I know it is due to my neck arthritis sometimes doing specific neck stretches for an hour can shift it completely but it is an arduous process. If not then to let it run its course is sometimes 3 days.
    Do you know what causes yours?


    knowing the cause of mine helped a lot with coming to terms with tolerating them.

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