Hi, am I the only one who feels like giving up?

sandeelilly
sandeelilly Member Posts: 77
edited 2. Aug 2024, 08:23 in Chit chat

Hi Guys and Girls,

I am new here and only diagnosed with PsA about 6 months ago, I was on 8 MTX tablets a week but nothing changed, now I am on Metoject pen 25mg, today will be my 5th one, but I just cannot shift the clouds, I have has "something wrong" for a long time and when I would go to the Drs they would just say it's my weight ( I'm 16 stone ) and all my issues started when I lost weight! by last year I was on 18 painkillers a day! till a new dr who joined my practice got alarmed and called me to ask why I was taking so many.

Thanks to him I have a diagnosis but because it has taken so long, the damage has been done!

Now I have another problem, tiredness has always been an issue but since I started the injections I am exhausted! no matter how much sleep I get! I am snappy over the silliest things and all I want to do is cry, is this normal? will it change? at the moment I do not know what is worse than not knowing or knowing and feeling like this.

Work is draining me I am trying to carry on but it is hard, I have looked at giving up work but I cannot afford to, the same is true if I reduce my hours. Sorry I seem to have become a world-class moaner too, Please give me hope as i cannot see the end at the moment and I hate feeling this way. I know my depression is part of it but it has never been this bad so do not think it is just that. I cannot talk to my manager as only been in the job 12 months and already since the injections I have been away a lot I think he is fed up with me and I cannot afford to lose the job.

Sorry to dump this all on you, but I have no one I can offload on who would understand, my partner is amazing but he is getting tired of it too, so please tell me there is light at the end of the tunnel and I promise moaning myrtle will disappear.

Thank you to Charlestown  for pointing me this direction

I hope you all are feeling well and looking forward to the long weekend.

Thank you in advance for reading my moan and I look forward to getting to know you all

Sandee xxx

Comments

  • noddingtonpete
    noddingtonpete Moderator Posts: 1,214

    Hello @sandeelilly please feel free to moan. This is a safe place where many people have been through similar experiences and can understand what you are going through. Do you have Occupational Health at work or an advice line you can call? Sadly depression and fatigue are all too common but is part of the journey - yes it sucks.

    Have a look at the following

    Please keep going and hopefully things will get better soon, but we are all here and rooting for you.

    Best wishes

    Peter

    Need more help? - call our Helpline on0800 5200 520Monday to Friday 9am to 6pm

  • Hi there @sandeelilly sorry to read your message, I’ve lucky I guess but I can’t imagine what life is like for you at the moment. I too suffer Mental Health issues, insecurity, depression and loneliness amongst other symptoms. What changed things for me was a quotation made by a young singer who audioned on America’s Got Talen. She was suffering terminal cancert. During the audition she said “You can’t wait for your life to get better, before you decide to be happy”. I found that beautiful and very moving and, I’ve adopted that strategy more recently. I’ve felt a lot better for it. I suffer from osteoarthritis in both hips and lover sine and sacroiliac joints. I have good and bad days, I’m also epileptic, insomniac and Autistic, but I get by because those were the cards I was dealt and have to play. At times I’ve felt like giving up, but I haven’t as yet. So please, please keep going!

  • sandeelilly
    sandeelilly Member Posts: 77

    @garbokker59 Agree as a rule I don't let it get too me just on that day I felt bad I'm grand now and thank you x