Hi, I was earlier this year diagnosed with a disease called Avascular Necrosis in my hips, which basically is a disease is a disease resulting from the temporary or permanent loss of the blood supply to the bones. Without blood, the bone tissue dies and causes the bone to collapse. If the process involves the bones near a joint, it often leads to collapse of the joint surface. After a lengthy wait, on Tuesday I finally saw an Orthopedic Consultant at the hospital who told me the AVN was at too advanced stage to treat and that Osteoarthritis has now set in on both hips, consequently I can expect my mobility which is already affected to get worse before they will do anything about it, especially in view of my age, 36. I am not sure really how I felt the appointment went as I was really ust tolf to take ibuprofen if the pain gets bad and to only go back if things get really bad, (not sure what they mean by that - being dragged downstairs by my kids!!).
Now, I have a positive attitude towards my condition and keep pretty active but I am still kind of coming to terms with it and wonder about things like fatigue, for example I get times where getting a cup of tea from the table feels like a gargantuan task, I think I am mainly curious about what the future holds, how quickly you can get worse, can diet, weight, supplements make a difference, as well as other things like work, I am desk bound on a computer so try and get up at least once an hour (don't arf move stiffly - try and look cool though), so any advice on work matters like is it a good idea to let ypur employer know or if they can help.
I have had pain and difficulty for some time, but after getting definate diagoses', it still feels like a step into the umknown, so I would really be thankful for any advice that can be given.
Thanks in advance.