PSA Golf - Fitness, training, physio plans?

AlexO

I'm looking for some advice in terms of how to move forwards with improving & maintaining fitness with PSA while trying to build in some mobility and gold specific training.

For a bit of background, I was diagnosed with PSA in 2008 and, after a bit of time trying to sort the rights meds, (Humira), I was able to regularly Mountain Bike until about 2 years ago when the meds started to become less effective. Since then, I've also developed 'Moderatley severe' osteoarthritis in my knee, hip and cervical spine - and am currently trying to get on the right biologics again after a few failed attempts, (and a less than efficient Rheumatology department).

Anyway, I've had to give up the Mountain Biking because of the above and have started playing golf instead which seems to be fairly good for joint mobility etc but not so much in terms of maintaining fitness. But, since giving up MTB, I've put on about 10kg and am looking for a way to motivate myself into losing some weight while working on mobility (maybe golf specific), and also accessing some kind of arthritis specific specific hands-on physio for mobility and pain-relief.

Ideally I'm looking for some kind of place where I could access all of these things in 1 place and develop some kind of integrated training plan for all of this but am not sure about where to start.
I'm just wondering if anyone's got any thoughts or previous experience of this kind of thing.

Any thoughts or advice appreciated.

Ellen

Good morning @AlexO

Well I don't think anyone has ever asked anything quite like this before. Your level of fitness was clearly quite high prior to your disease causing so much trouble.

I will attach our exercise information obviously you can do as much or as little as you can manage:

https://www.versusarthritis.org/about-arthritis/exercising-with-arthritis/exercises-for-healthy-joints/

and our Let's move with Leon programme:

https://www.versusarthritis.org/about-arthritis/exercising-with-arthritis/lets-move-with-leon/

Wishing you all the best and hopefully you'll get some replies from our members too.

Ellen.

frogmorton

Someone once told me to eat less that something huge like 80% of weight is what we eat.

But for a previously very active person it's tough to suddenly start gaining weight isn't it?

I worked out my TDEE total daily energy expenditure for me as a woman it's actually only 1663 a day which isn't a lot. That is the level at which I will not gain weight just maintain as I am.Sad eh?😓

I walk every day (brain wouldn't let me play golf!) and I have done some of the exercises Ellen gave us I also bought an electric bike and find that fantastic exercise. I only use the power if it's too uphill!

Hope you get on ok and will keep posting

Toni

Moira

I can understand too. When I was teaching my hobbies were contemporary dance (was in a community performance group linked to a majot professional company) and Scottish country dancing.

Sadly these activities are out. But I can always dance in my head!!

I have several arthritic conditions; had a knee replacement 9 years ago and need the other doing. Waiting lists are horrendous. I've been waiting more than a year for hand ops and just feel rejected (told I have another year to wait) All my music (guitar, uke, piano Renaissance recorder) and goldwork embroidery are all out. But I do physio indoors from VA and some managable dance barre. I also go to Tai Chi which is fab and a Keep Fit class locally. Good chat to with others so keeps me connected.

I've put on weight as I've got older. I keep to a healthy but not silly diet and do the exercise above. I used to stress but have given up - doesn't help. So at over 70 I just accept I can't be like my sylph weight when I was in my 20s/30s and even 40s!!! I'm cuddly but fairly happy.

Hope you can find something managable.

AlexO

Thanks for the responses. I think I'm going to get my Gp to refer me to the Exercise Referral Scheme as a starting point - hopefully that will get the ball rolling in the first instance. It looks like you get access to a personal trainer for 12 weeks as well as advice and access to appropriate classes. I think I'll look into physio/massage therapy separately.
Ultimately, I'm hoping that the new biologics (Ixekizumab) works as well as when I first started on Humira but I want to do as much as I can now to be able to stay active for as long as possible.
Thanks again

frogmorton

Sounds like a really good plan @AlexO be good if you let us know how you get o with the new biologic as not many have tried it yet here.

Good luck

Toni x