New to forum & yuflyma
Hi I have been diagnosed with multiple types of arthritis. I trued methotextrste and dulfaselazine. The side effects were dire and amatryptaline was awful. The headaches. Now been offered yuflyma ad they can't offer imraldi any more ? Why? I'm on prednisolone & have drug induced prediabetez. Must say the side effects freak me out especially infection risks afsI'm allergic to antibiotics. Also it can cause a cancer thst a close relative died of . Feeling depressed with it all. Pain stiffness side effects. Does any one have words if wisdom ?
Comments
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Hello @Rockhopper welcome to the online community
We are glad you found us and hope that joining in with the community will give you the words of wisdom you seek. You have been prescribed quite a range of medication to ease your multiple types of arthritis and are concerned about the possible side effects because you are allergic to antibiotics. The latest medication you have been given is yuflyma which is a biosimilar of adalimumab. I attach a link which you might find interesting.
I also include links to mindfulness and the exercise videos which many of us find helpful in support of our emotional and physical wellbeing.
We look forward to hearing from you again soon
Take care
Poppyjane
If it would be helpful to talk to someone ring the Helpline 0800 5200 520
Monday - Friday 9.00a.m. - 6.00p.m.
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Thankyou. The depression is overwhelming at times. The grief for a kufe list and fears for the future. I've been yo young stiff pain unable to move inflammation etc for over a year and no meds have worked yet other than steroids but they have caused issues. And swp benefits are a nightmare to navigate.
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@Rockhopper I feel your pain. Like you I have a lot of pain and have had no luck with meds. Today I was so bad when I got up that I took two tramadol but, although it initially eased the pain which was wonderful, now I am left with side effects and have been feeling nauseous all afternoon, woozy and with a headache threatening! It’s not easy is it? I don’t think a lot of health professionals truly understand what it’s like to have pain all the time and the massive impact that it has on your life. We can send men to the moon but we can’t come up with a decent painkiller. Perhaps we should be looking to jungle apes as they seem to know what to use to heal themselves.
Keep your chin up and hopefully we’ll find something to help us soon xx
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Hi There
We’ve had a similar journey. I really rate Yulflyma - I’m generally living like I don’t have arthritis.I too was worried about the side affects but I’m 6 months in and luckily? I haven’t had any illnesses - and I use the London Underground very regularly. I did have a bunch of tests before I started and some vaccinations.
People reading my posts will be bored of reading this but alongside my Yulflyma injections I removed gluten, artificial sweeteners, the deadly nightshade veg and a massive source of stress from my life and I feel like a new person. I was previously suffering with terrible fatigue, stiffness, pain and migraines.
Good luck - I hope it works for you. It will get better.1 -
IThankyou for replying. Yes the Mediterranean korean & japanese diets suit memost. I am trying to have extra virgin olive oil every day and you can see the difference. And I confess I was a health professional who really didn't appreciate the horrific pain and stiffness of arthritis ( very few of my patients had it ) . Wr need more support with our daily activities so wr can do the tibgs'we enjoy.
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Been on Hydroxychloroquine 400mg for 10 plus years, it dulls the pain but never really gone. Have to have a special eye test every year as it can affect your eyes, 62 now, life for me goes on, I work full time, I can't be fixed so get on with life the best way I can. Guinness and red wine help 😁
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Hi everyone.
I have had psoriatic arthritis since 2013. Treatments include NSAIDs and DMARDs. I was on methotrexate for a while but was struggling with nausea with it. Things were ok for some time and then March last year started to have awful flare ups again and nothing seemed to help. Changed to leflunomide and continued with NSAIDs but nothing changed the flare ups which became debilitating.
Was then offered a biologic - Yuflima - which i started in April. 5 injections in and i started to get a rash on centre of palms consisting of small blisters. This then spread and became huge blisters all over hands and body covered in blister rash. Was told it is adverse reaction to Yuflyma so stopped taking it. Was hospitalised for a week as my skin got so bad - skin on hands literally peeling off and limbs covered in psoriasis.
I have not had any issues with my skin at all - ever - and i am now left with palmaplantar psoriais affecting hands and feet and psoriais covering arms and legs.
It has taken be over 24 weeks just to get a dermatology appointment withe the NHS - that's an urgent one!! I have seen countless GPs, been given steroids and steroid creams which are applied daily. had to pay for a private appt with a dermatologist as i had no idea when i would be seen at the NHS. I have another 5 weeks until my appointment. My finger nails are falling off, my hands are just cracking and peeling every day and it is now a struggle to out shoes on.
As you can imagine i am at my wits end with this!
Has anyone else had a reaction to this drug? there was no mention anywhere of the potential of such serious side affects. The only reference was about injection suite rashes.
I find it incredible that the NHS department who prescribed this to me has no way of influencing the dermatology department to get me seen sooner as an urgent patient.
If you are looking to take this drug - please do question this in depth with your consultant. I know this is a rare reaction - but now my immune system has been changed and i now have to deal with this skin condition either for the rest of my life unless there is something to reverse it
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Hi @HRUD Welcome to the online community and thank you for sharing your experience with the humira biosimilar, Yuflima, the medication being considered for @Rockhopper who started this thread,
I also find it incredible that you haven't been able to see a dermatologist on the NHS sooner than in 24 weeks. I can quite understand you paying to see a dermatologist privately.
I am aware of one member @Arciere who is doing well on the medication as are one or two others I can remember.
Adalimumab threads here:
Yuflyma side effects threads here:
Not many so put Adalimumab side effects threads here:
You really have been incredibly unlucky I do hope that there is hope of the reaction and it's on-going issues can be reversed for you.
My best wishes
Ellen.
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Thank you Ellen - i will read the articles you have sent and fingers crossed i won't be like this forever!!
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Oh my gosh @HRUD
What a shocking reaction you had.
I bet you'll be terrified to take anything else now😮
I googled it and found an article about drug induced psoriasis. So unfair.
I do hope you'll keep posting and let us know how you get on.
Take care
Toni x
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I'm sorry to read about your rashes. I've had these reactions to other meds . I'm yet to start yuflyma… probably early 2024.. awaiting phonecall re meds delivery and nurse appt. Take care
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