Methotrexate

pianoforte
pianoforte Member Posts: 41
edited 27. Nov 2024, 09:51 in Living with arthritis

Hi everyone, I have ankylosing spondiloarthritis and I'm have monthly biologic injection treatment , I've been taking 22.5mg methotrexate weekly. But, as I had some ALT abnormalities on my previous blood test, I was told by the rheumathology advice nurse to stop taking them for 2 weeks then do an other blood test, which I've done and all was normal. It was probably the COVID vaccin and a bad cold that triggered the a normality.

However, as I've not been taking methotrexate for 3 weeks and not feeling worse nor better, I just wonder of the use of taking these toxic tablets. They cause me nausea every time I take them!

I wonder if anybody else has experienced this. I know I need to ask advice from the rheumathology dept but unfortunately didn't get any response yet.

Comments

  • Mush
    Mush Member Posts: 9
    edited 26. Nov 2024, 08:44

    My previous specialist in London (Jenny W) wouldn't put me on that as I drink, now back home in Southampton, they are trying to cut me down to 200mg hydroxycloroquine and move me to Methotrexate, Jenny was my specialist for 10 years, it was good enough for me all those years, i'm sticking with Jenny as she knew what worked for me and my lifestyle, I have now refused their offer 3 times, yes not pain free but it does work for me.

    Consultants named abbreviated as Guidelines do not recommend using a consultant's full name - Peter (Admin)

  • Rockhopper
    Rockhopper Member Posts: 7

    Yes I was severely ill and the headaches were awful. Immexiaterelief when idtlpped but the methotextrare stayed In my body for a while

  • frogmorton
    frogmorton Member Posts: 30,026

    I imagine if it takes us 12 weeks to build the MTX up in our systems it's still there a bit now @pianoforte so might need more time to know one way or another if you need it.

    I would also speak to Rheumatology when you can.

    Be interested to see how you get on without.

    Best of luck

    Toni x

  • pianoforte
    pianoforte Member Posts: 41

    Thank you all for your comments! thanks to this community! I still have no return from my rheumatology department and don't know what to do.

  • frogmorton
    frogmorton Member Posts: 30,026
    https://community.versusarthritis.org/discussion/comment/728774#Comment_728774

    Oh dear so frustratingly common these days. Zero response from them. It's just not on is it?🙄

  • pianoforte
    pianoforte Member Posts: 41

    Thank you, frogmorton! I'll try again.

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