5,4,3,2,1 Thunderbirds are GO!

Airwave!

It’s been three days since I had my first Biologic injection (nothing else has worked over the last two years) and I’m feeling so cold. After 30-40 years of feeling hot I’m now feeling cold, has anyone else come across this? We keep the indoors temperature set at 19 degrees yet I’m sitting here with thermals on, insulated trousers, two pairs of thick socks and just about to reach for my bobble hat! Yes I know, worth a laugh!!

Is it a false perception, outside temperature affecting the inside temperature or just me jumping on a false idea and clinging desperately to it with bleeding fingernails?

If it really is inflammation being defeated WOW! If not then it’s back to my normality?

noddingtonpete

Hello @Airwave! what treatment have they put you on? - might help to specify what you are taking and then maybe others on the same will share.

Hope it goes well

Peter

lynnemargaret1958

Hi....I've just started on Adalimumab injections (since before Christmas) and I'm really feeling the cold. Hugging a hot water bottle all the time at home, covered with fleeces and have extra heating on. Wearing extra jumpers etc when I'm out and about. I'm not sure if it's the medication or the RA which is causing this. Changing the subject - has anyone else found this medication doesn't seem to be working?? I've just done my 5th dose, but after having a blood test yesterday my inflammatory markers (esr and crp) are even higher. Is this normal as its still early days on the Adalimubab?

MrDJ

@Airwave!

This year certainly does seems to be a different sort of cold as it does feel bitter out there which can affect the inside temps. It affects us all differently and sadly the older we get the more we feel it.

Ive not had the injections but any Biologic i believe they say give it one to three months to see if its helping.

Have they said when to have your next lot of bloods?

@lynnemargaret1958

I would of thought after the 5th injection you should be feeling some benefits and not seeing the opposite on your esr/crp. maybe a call to your specialist nurse in rheumatology may be an option.

For me ive been on biologic Infliximab infusion for 24 years. Originally on Infliximab for 15 years every 8 weeks and then changed to the cheaper bio similar Remsima since then every 6 weeks.

All i know is i walked in on crutches after using them for almost 15 years and i walked out after 3 hours unaided.

esr/crp were in the hundreds and after 7 & 10. I actually asked them to do another blood test as none of us believed it but they came back within range which was the first time since 1985 when it all started.

Sadly like most of us the damage has already been done before these drugs were invented.

Im starting to struggle again now as one of the meds ive been on from the beginning theve stopped as it was eating away at my stomach so the pains are back and new areas being affected but hey ho, we must continue.

Keep us posted how you both get on.

lynnemargaret1958

So sorry to hear you're struggling. Unfortunately these treatments all seem to have side effects one way or another. I hope the warmer weather will help? Just waiting now for my next appointment with rheumatology. Thank you for your comments. They are much appreciated.

Airwave!

I’m on 20mg of Idalumumab (Yuflyma), since it’s the first injection no blood tests have been ordered and I haven’t had one for a while. I’ve been on Predanisalone for just about a year waiting for funding etc etc. I have also been on Hydroxycloroquine for three years but recently had to stop when I got large areas of red itchy and very sore skin. Usual problems with the steroids, weight gain etc now on 5mg.

It’s a grin, honest!

Naomi33

Afternoon @Airwave!

I am awaiting Yuflyma injections after 6 months of blood tests and xrays ???

Continuing with Hydro aswell as touch wood seems to suit me XX

I have steroids in elbows as OA in them.

Cold and damp is not helping me at all !!!

You are not alone best wishes @Naomi33

MrDJ

https://community.versusarthritis.org/discussion/comment/731315#Comment_731315

Back in the 80's not much notice was taken about arthritis and prednisolone steroids, until i came along.

I was told medical journals and bnf was changed thanks to my condition.

Within a month of diagnosis in 1985 and being told i would be in a wheelchair within 6 months (couldnt walk unaided after 9 months and used crutches) i was put on 6 sulphasalazine (3gram a day) and 60mg of prednisolone which continued for a year. sadly the pred caused a cataract and once this was discovered they sent me to eye hosp casualty and it was discovered while the pred was helping my pains the arthritis was attacking my retinal nerve and i lost my sight in one eye. they done an emergency lensectomy but it didnt help.

now arthritis and prednisolone eye checks are requested more regularly so all i can say for anyone on steroids if you notice any blured vision get it checked out at an optition pronto.