MUST LISTEN! Zoe Tim Spector (Rheumatologist) and Dr Tamiko Matsumoto (also rheumatologist, U.S.)

Arthuritis

Two rheumies interviewed, and the pain & path to remission wisdom shared was well beyond anything I have heard from 3 NHS head of department rheumies. I had discovered most of it through surprised and painful trial and error, Dr Tomiko was surprised by the same info, having discovered it, shock horror, by asking and listening to patients on how to stay in remission pain free. Wish I’d been told this or the podcast existed when I was first diagnosed, sadly, just like losing sense of smell was a known distinction to patients and EU docs, NICE/NHS is as usual, not only behind the times but can’t accept that other countries might be way ahead.

Please listen to this.

https://podcasts.apple.com/gb/podcast/zoe-science-nutrition/id1611216298

FYI - I got myself into drug free, MTX free, symptom free glorious remission for 2 years!!

Rheumies reacted with shock as if I’d broken their most deeply held beliefs! Blood tests and various imaging scans followed. Bloods still showed I had the RA marker antibodies, but everything else including imaging was normal, I was even gym’ing 3x a week.

(Sadly after 2 years I ate a trigger food and landed myself back into full RA 24 hrs after eating it, and back into their unhappy frequent flyer programme).

I hope I can use what I learnt and the podcast to have a better second time experience.

frogmorton

Thanks for linking the podcast in @Arthuritis. Its exactly the one i meant. It has to be must watch/listen information for anyone with inflammation.

Toni x

Arthuritis

@frogmorton Thank you for telling me about it, I hadn’t been listening to Zoe for a while, but this podcast was a real breath of fresh air. If only NHS Rheumies would listen to it.

Hopefully you had a look at my recent New Scientist post too! (Apologies if i am repeating myself, first round of autoimmune knackered my short term memory).