New to forum

debatat

Hi Just wondered if anyone could help. I have inflammatory arthritis and lupus clotting disorder. I am in the midst of a really bad flare. Most of my joints are inflamed at mo, this is def my worst yet, factor in the tiredness, stiffness and pain and I just feel so down. Nobody seems to really understand what it is like as no one I know has anything like this. People cant really 'see' what is wrong, it is so hard for my husband and children. Sorry for moaning, I am normally such a positive person.

redpoppy

hi debatat,sorry to hear your feeling so low.we all know what your going through so please dont feel alone.i know family and friends try to understand but as you and i know no one does unless they have to deal with these illneses themselves.i like you are going through bad times at the mo and its very hard to be posative.i only joined a couple of weeks ago and i found it a great help and comfort knowing there is people who know what your going through.that alone does make you feel better.you can tell us anything and even moan at us. never keep things to yourself.hope your feeling a bit better soon.

debatat

redpoppy wrote:

hi debatat,sorry to hear your feeling so low.we all know what your going through so please dont feel alone.i know family and friends try to understand but as you and i know no one does unless they have to deal with these illneses themselves.i like you are going through bad times at the mo and its very hard to be posative.i only joined a couple of weeks ago and i found it a great help and comfort knowing there is people who know what your going through.that alone does make you feel better.you can tell us anything and even moan at us. never keep things to yourself.hope your feeling a bit better soon.

Thank you. Its so nice to hear from someone who knows what its like. I have resisted accepting my condition for 2 years. I have finally decided to accept help. So here I am, the house is a complete mess and I am on this forum instead with my back to the mess!!!! I have to admit it is really helping. Sorry to hear that you are having a bad time as well. Hope you feel a bit better soon.

lindalegs

Hi Debatat

So sorry you're feeling low at the mo - remember ever flare-up is a phase and you will feel better, hopefully before you know it. I've had RA for 22 years and knew I'd accepted it when I began to have it in my dreams :shock: Other people can't feel our pain, although you wish some of them could, they just see us struggling a bit more than usual and know we're a bit snappy. :x Pain itself is so very tiring so it all becomes a vicious circle. Nasty b*****r this disease is. The dust is thick in my house, my french homework needs to be done for tonight, there's loads of ironing and I could just do with a cup of tea so we're all as bad as one another . Chin up Mrs a good day is just around the corner.

Hope you feel better very, very soon.

Luv Legs

redpoppy

debatat wrote:

redpoppy wrote:

hi debatat,sorry to hear your feeling so low.we all know what your going through so please dont feel alone.i know family and friends try to understand but as you and i know no one does unless they have to deal with these illneses themselves.i like you are going through bad times at the mo and its very hard to be posative.i only joined a couple of weeks ago and i found it a great help and comfort knowing there is people who know what your going through.that alone does make you feel better.you can tell us anything and even moan at us. never keep things to yourself.hope your feeling a bit better soon.

Thank you. Its so nice to hear from someone who knows what its like. I have resisted accepting my condition for 2 years. I have finally decided to accept help. So here I am, the house is a complete mess and I am on this forum instead with my back to the mess!!!! I have to admit it is really helping. Sorry to hear that you are having a bad time as well. Hope you feel a bit better soon.

...........your very welcome we are all in the same boat more or less.when i was first diagnosed my docter said to me.we all have a cross to bear and this is yours :roll: i didnt know wether to laugh or cry.but you have to accept it in the end.if you dont you cant move on.....anyway forget about the housework for now it will still be there later.unless you have a magic fairy that comes along and does it all for you. im still waiting for mine.

mash65

redpoppy wrote:

debatat wrote:

redpoppy wrote:

hi debatat,sorry to hear your feeling so low.we all know what your going through so please dont feel alone.i know family and friends try to understand but as you and i know no one does unless they have to deal with these illneses themselves.i like you are going through bad times at the mo and its very hard to be posative.i only joined a couple of weeks ago and i found it a great help and comfort knowing there is people who know what your going through.that alone does make you feel better.you can tell us anything and even moan at us. never keep things to yourself.hope your feeling a bit better soon.

Thank you. Its so nice to hear from someone who knows what its like. I have resisted accepting my condition for 2 years. I have finally decided to accept help. So here I am, the house is a complete mess and I am on this forum instead with my back to the mess!!!! I have to admit it is really helping. Sorry to hear that you are having a bad time as well. Hope you feel a bit better soon.

...........your very welcome we are all in the same boat more or less.when i was first diagnosed my docter said to me.we all have a cross to bear and this is yours :roll: i didnt know wether to laugh or cry.but you have to accept it in the end.if you dont you cant move on.....anyway forget about the housework for now it will still be there later.unless you have a magic fairy that comes along and does it all for you. im still waiting for mine.

my dog makes loads of mess orlo he has his feet wiped be4 he comes in THANK GOD FOR LAMINATE FLOORING.today its filthy,but had physio running(not running :oops: ) around alday come home its a tip but itll stay like it til me or o/h do it.the queens not coming for tea or any1 else thankfully.theres more to life than housework,& i was really houseproud b4 arthr,whats the point of wearing urself out to clean every day no1 appreicates it & its dirty again as soon as its done so worry about urselfs, get better cause the house aint in pain. debs

frogmorton

Hi Deb
welcome to the forum!
Sounds like you are having a really grotty time Poor you! You have every right to feel miserable and sorry for yourself you know. Every one of us does from time to time.
You WILL feel more in control again soemtime soon. In the meantime, maybe you can get soem help in the house to make you feel a bit better. When you feel dreadful there's not much worse than looking at all the things you cant do is there?
In the meantime come on here and talk to us lot!
Take care
toni x

holly_83

Hi, I'm Holly, I'm 27, I'm a lone parent to my 4yr old son and I have Fibromyalgia. I have been a sufferer for about 14 months, but I have only recently been diagnosed.
I seem to be in a lot of pain on a daily basis and life is a real struggle at the moment.
I would like to talk with other Fibromyalgia sufferers and see if we can help each other.
Holly Smile

dachshund

Hi Debs,
i know how you feel it's a ache like toothache and its there all the time.
at times it gets so pain full you have to sit down
also you cannot stand for a long time.
Deb is that like you it is all over your body at times.
this forum is so good because you have some body day or night to talk to who understand how you feel.
sorry to go on. take care joan xx

psyart

Hi Debs - welcome to the forum!! here is a good place to get support and cyber hugs!!! we do understand on this site - we all suffer from some form of 'arther' here - its a condition that effects us in different ways - but the emotions are the same - anger, fear, sorrow, depression, etc!!! someone is here most of the time - even a night in the night cafe on the chitchat forum!!

welcome and ((((hugs))))) to help!!

louise xx

woodbon

Hello, I'm glad you've posted, thats why we have this forum, as I think you will find lots of people in similar positions as yourself.

Seems that you are having a really bad time at the moment, I have OA, but that has ups and downs and sometimes I feel great, but at others I just want to do nothing very much at all! Thats the way most of these diseases go. The doctors tell you to learn to pace yourself, so that you about the same every day, not rush at things on the days you feel fine and then make yourself ill the next few days. It does work, but its hard to do in reality, as you want to make the best of a good day!

Nice to 'meet' you!
Love Sue

skezier

Hi Deb,

So good to see you again, I was wondering how you had been. Sorry the joints are being so bad and the flare is giving you grief. I don't think many people do understand but they do here, sadly. I have to say for me its the tiredness that really gets to me. Learning to pace your self is what I keep being told is the answer bu how to learn o pace your self isn't something I seem too good at.

I hope you soon feel a lot better and have less inflammation. Cris x

frogmorton

Hi Holly

Good to met you - theer are others on here with fibro who will surely ahve some advice for you. My ex MIL has it so anything I can help with I'll try

Love

Toni xx

dorcas

Hello Holly

welcome from me too.

I don't have fibromy but there are lots of other peeps here who do and I'm sure will be happy to share their experience with you.

It can't be easy managing with a 14mths old son.....I do hope you have lots of help at home?

(((hugs))))

Iris x

holly_83

dorcas wrote:

Hello Holly

welcome from me too.

I don't have fibromy but there are lots of other peeps here who do and I'm sure will be happy to share their experience with you.

It can't be easy managing with a 14mths old son.....I do hope you have lots of help at home?

(((hugs))))

Iris x

Hi Iris,

Oliver is 4, prob a typo from me!
We live alone and unfortunately live away from our family, but to be honest I wouldn't have it any other way. Oliver is my world and having Fibro just makes it that bit harder.
I do hope I do manage to get in touch with other people with Fibro as it is so frustrating as my doctors have not given me any information except one leaflet. I truly am in the dark.
The internet is fab, but it seems that America is the only place where research into the condition is being carried out. I have heard of a Fibromyalgia Diet and I am waiting to hear back from a nutritionalist.
Holly x

frogmorton

Hi Holly

I was single parent to my two girls when I had my back op they were 5 and 8 - so you do have my sympathy

What medication are you trying/have you tried??

Love

Toni xx

frogmorton

HOLLY

One or two with fibro are posting to you on the one saying HELLO by Jean123.

take alook