Really Fed Up

michelle22

Got a letter in this morning from the Rhummy telling me that my appointment has to be changed I don't go back till May now I am in agony don't they understand this my last appointment was changed to I am really fed up with it all. To be blunt I am ready to call it a day with it all I can't sleep my partner is fed up with me always moaning that I feel ill my daughter wants her mum back. Me I just want to feel normal also I am waiting to hear from the DLA to see if they are going to take the car away as some kind person phoned them to say I was going to go back to work so I have been waiting on them getting back to me since Dec I have to go for an assesment just like scottishlass had to go for on the 2nd of Feb I just hope that I am fit enough to go for it and get thorough it so I can get back to work one good thing is that I am suspended from work through ill health so I am getting paid that is the only good thing about it all I started a flair last week yesterday I felt great the best I had felt for Months and today I am just as bad as i was last week and My wonderful partner has organized for us to go away for the weekend to St Andrews I don't know if I am going to make it as I feel so bad and I so want to go away as it will give him a break as he really needs it after looking after me and the kids as the kids won't be with us I just don't know if I am going to manage.I am going to spend tomorrow in bed and Thursday jsut around the house so I hope to be ok for Friday. Also if they take the car away I am going to be house bound as I live in a village with two shops as I know I can't afford a car with power steering and automatic also quiet high up so I can get in and out.

I am so sorry this is such a long rant but I don't know what else to do I have had enough of this rotten illness and just live in general

colinone

michelle22 wrote:

Got a letter in this morning from the Rhummy telling me that my appointment has to be changed I don't go back till May now I am in agony don't they understand this my last appointment was changed to I am really fed up with it all. To be blunt I am ready to call it a day with it all I can't sleep my partner is fed up with me always moaning that I feel ill my daughter wants her mum back. Me I just want to feel normal also I am waiting to hear from the DLA to see if they are going to take the car away as some kind person phoned them to say I was going to go back to work so I have been waiting on them getting back to me since Dec I have to go for an assesment just like scottishlass had to go for on the 2nd of Feb I just hope that I am fit enough to go for it and get thorough it so I can get back to work one good thing is that I am suspended from work through ill health so I am getting paid that is

Hi Michelle, Calm down girl calm down, The stress of all this can make you feel worse. Phone the Rheumy secretary tell her how ill you feel and how you have been messed about. Tell her you are so ill you can-not waite any longer or ask your GP to phone her whilst at the GPs. Just because you go to work is not a reason to loose your car. Lots of people have mobility and work. Phone the Secretary soon as possible and try to get it sorted they can be quite helpfull tell her you will take a cancilation at short notice infact tell her anything. You have to try to stop worring and letting it all build up, I know its hard Michelle and i know how difficult it is to cope. Some times partners dont understand because you look well on the outside they might think your ok, People who dont have arthritis have no idea what its like to suffer the pain and sickness you can feel. Try talking to him. and try to stop worrying about the things that might happen. Take care and i hope your feeling better soon
Colin

woodbon

I'm sorry you don't feel well at the moment. That makes it hard for you to be positive and relax, which makes you feel worse, its a vicious circle I agree with the above comment about going to the hospital, but I know how you feel. If you look at my post yesterday, you'll see I'm going through problems with hospitals! I thought they were supposed to make you better not worse. now how stupid is THAT :!: :!: :!:
Get plenty of rest and try to relax a bit, with a bit of luck, you'll have a great week-end Lots of love Sue xxxx

nearlybionic

Hi I hope you do feel well enough to have your weekend breakIt will be nice for you to have something nice moved about. It mat onlt be a name on a list to them but it is a really important date for us patients!! I hope that you have been able to speak to either the secretary or gp about it and it is sorted asap. I have been messed about re appointments for months, rerferred by gp to 1 hospital , then by them to another hospital. I seem to spend my life waiting for the postman!!
I have 2 children and feel they are being affected by my illness (OA) and am hoping that I feel well enough to do something with them at the weekend. (and my hubby) Unfortunately they all bear the brunt of my frustrations and anger with my body and the waiting etc.. If you ever want to talk I`m here.

petmad

I do understand how you feel and hope that by posting here it has helped you. Often just being able to get it down in writing and out of your system helps.
Now do as Colin advises and get onto the secretary.

In term of your car and work, the job centre phoned me just to discuss my future plans. THEY..advised me that I could consider returning part time, this would allow me to keep my DLA and that I would not be much worse off financially than if working full time. Linda

michelle22

Thank you all I feel so much better today more upbeat I just don't know what to do with myself when I get like that I am just going to muddle through as I know the rummy is busy with others I will just have to wait my turn just as everyone else has I am going to get onto the ot to see of she can help me get comfortable in bed at night as I feel that is the biggest problem just now not sleeping due to pain and being uncomfortable. Than you all for your reply's it is nice to know that I can voice how I feel without someone saying that I shouldn't feel like that

frogmorton

Hi Michell
Well it's all going wrong at once isn't it :?:
You have every right to moan and this is, after all the place to do it, so don't worry about it.
I'm sure DLA won't take your car back. Being in work is nothing to do with whether you are entitled - it is a non-contributionary benefit which means it's available to all of us irrespective of our earnings if our health is sufficiently 'bad' enough to warrant it.
Scottishlass is the person to talk to about that awful test,
Sorry you have to do it - I think it's disgusting, but she got through it and fingers crossed so will you.
Anyway - rest up for now and i hop you get yopur break - you need it.
Take care
Toni x