feelin low and in pain

Shell

Hi
Since saturday i haev been in agony again with knees ankles hips etc. Felt very tired and generally achy as well. I went to see the gp on monday as i couldnt face going to work with all the pain and again i just burst into tears with it all i dont have a days grace from the pain it is 24/7 and its not helping that the rhemy is stil deciding what is wrong with me. first its pa (diagnosed 3yrs ago) then he said fibro in Oct now he has sent a letter stating after bone scan no signs of pa? all i know is this pain is sooooooooo real and its agony my 3 fingers on y left hand lock and my big toe. my knees are agony to walk upstairs and on monday ii had harific pain in the back of my neck (spine) and the muscles across my back making my right arm ache.
Gp put me back on Naproxen along with 20mg MTX and increased amitrip to 30mg & tramadol and am on sick from work now for a week.
The surgery has just phoned to sa they have tried to bring my appointment forward to see rhemy as it isnt until march but the are fully booked so no can do but the rhemy nurse will phone prob tomorow!!!!!!!! i jsut dont know what to do it is getting worse but nobody seems to be listening to me and all the test are not showing up anything .
Michelle

greyheron

Shell wrote:

Hi
Since saturday i haev been in agony again with knees ankles hips etc. Felt very tired and generally achy as well. I went to see the gp on monday as i couldnt face going to work with all the pain and again i just burst into tears with it all i dont have a days grace from the pain it is 24/7 and its not helping that the rhemy is stil deciding what is wrong with me. first its pa (diagnosed 3yrs ago) then he said fibro in Oct now he has sent a letter stating after bone scan no signs of pa? all i know is this pain is sooooooooo real and its agony my 3 fingers on y left hand lock and my big toe. my knees are agony to walk upstairs and on monday ii had harific pain in the back of my neck (spine) and the muscles across my back making my right arm ache.
Gp put me back on Naproxen along with 20mg MTX and increased amitrip to 30mg & tramadol and am on sick from work now for a week.
The surgery has just phoned to sa they have tried to bring my appointment forward to see rhemy as it isnt until march but the are fully booked so no can do but the rhemy nurse will phone prob tomorow!!!!!!!! i jsut dont know what to do it is getting worse but nobody seems to be listening to me and all the test are not showing up anything .
Michelle

Hi Michelle

I don't have any quick or easy answers for you but I just wanted to give you a gentle electronic hug and say that I hope you will find a way through this soon.

Take care and let us know how things go on.

Wendy

miss_l

Im so sorry to hear your suffering at the moment.
Just sending another computer hug !!

frogmorton

Hi Shell
We're listening!
We care!
Sorry you are in such pain.
When the rheumy nurse rings the only suggestion i have is - don't stop yourself crying and offer to come to any cancellations - even at very short notice if you can
Take care
Love
Toni x

colinone

Shell wrote:

Hi
Since saturday i haev been in agony again with knees ankles hips etc. Felt very tired and generally achy as well. I went to see the gp on monday as i couldnt face going to work with all the pain and again i just burst into tears with it all i dont have a days grace from the pain it is 24/7 and its not helping that the rhemy is stil deciding what is wrong with me. first its pa (diagnosed 3yrs ago) then he said fibro in Oct now he has sent a letter stating after bone scan no signs of pa? all i know is this pain is sooooooooo real and its agony my 3 fingers on y left hand lock and my big toe. my knees are agony to walk upstairs and on monday ii had harific pain in the back of my neck (spine) and the muscles across my back making my right arm ache.
Gp put me back on Naproxen along with 20mg MTX and increased amitrip to 30mg & tramadol and am on sick from work now for a week.
The surgery has just phoned to sa they have tried to bring my appointment forward to see rhemy as it isnt until march but the are fully booked so no can do but the rhemy nurse will phone prob tomorow!!!!!!!! i jsut dont know what to do it is getting worse but nobody seems to be listening to me and all the test are not showing up anything .
Michelle

Hi michelle sorry you in so much pain and feel so down. Have you noticed when your feeling well the appointments come thick and thin, then when your bad it seems to take forever. I know what the 24/7 pain is like it gets hard to cope but you do because there is nothing you can do. I do hope you are feeling better soon, Have you tried phoning the Rheumy nurse and talking to her. Take care
Colin

Shell

Thanks for all your kind replies. I am still waiting fir the rhemy nurse to phone although my pain has eased a little i am able to move more now with out been in agony having said that i am still in the usual pain.
Its really hard some days just dont know why i bother dont even want to get out of bed sometimes even though it hurts to lay there but whats the alternative get up and be in the sme pain?
I feel so guilty on my youngest son hes 13 and i know he is big enough to get up and sort himself out for school which he has been doing this week but i should be up with him and waving him off like i always do i feel such a bad mother am no fun anymore. Am miserable at work cos of the pain and the people dont understand they jst look at me. i just want some release from all this pain.
Sorry for the ramble
michelle

nearlybionic

Hi Michelle
I don`t have RA , but OA. But I do have pain. My children are 12 and 10 and I too feel like a rubbish, miserable mum. Its hard to be all cheery when you have pain but I try to give them time to play, talk, or help with homework etc.. Last weekend We went swimming as a family. No one expected me to go due to pain, but I thought `well I have pain sat down, I might as well go for a swim. I did hurt but my kids enjoyed it and I felt better about that. I`m sure your son understands and will want you to rest etc..
Take care

joseyanna

Hi Michelle,

Sorry to hear about all your pain. I have pain in my neck and shoulders and lower back also, (Although I ache and have pains all over). The pain in my neck and shoulders is horrible because at night time I can't get comfortable and spend hours moving my neck and shoulders to try and get them comfortable. It gives me terrible headaches in the back of my head. I had to wait 4 months for my first Rhumy appointment where they did blood tests, xrays and ultrasound. I had to wait another 4 months for the next appointment and treatment! I was on tramadol which just didn't releive the pain and fatigue. I phoned my specialist at Rhumy and told her I could not wait in so much pain for my next appointment. She gave my doctor the go ahead to give me a steroid injection. It was great but took 5 days to work and lasted just under 3 weeks. I begged my doctor for another injection which he gave me to tide me over. I have now been to my 2nd appointment and have been diagnosed with early inflammatory joint disease, (I have wear and tear also). I have to wait another 3 weeks to see the Rhemy nurse who will give me Hydroxychloroquine which takes 12 weeks to work. It is so fustrating as we seem to have to wait for months in pain for appointments. It's not fair! Take care Jo

Shell

feeling a little better the pain is easing slightly now although saying that i am still in pain but as i call it my day to day pain that i am always in. when i had the pain inmy neck and across my shoulders i also had a terrible headache at the back of my head something i have never had before.
The rhemy nurse never did ring me today which hasnt help to lift my spirits.
Michelle