Apologies for the length of this post!
I had my rhuemy appt. today and I was expecting big things but it was a disaster
I don't know what to do with myself-I'm so down about it all. Yet another rhuemy appt. where I've came away thinking that the drs think I'm faking it!
I'm seronegative and therefore have no RF in blood.
As you might know, I've been having terrible problems with lower back, chest and hips. All the xrays came back fine with regards to 'no abnormalities in joints'. That's good in one way but not in another, i.e. why am I in so much pain? All my bloods came back normal, low esr and crp and the dr was basically saying 'you've not got any inflammation'-she never even looked at my swollen fingers and ankles. I could hardly get out of seat and walk to the bed today. My feet are so sore.
They don't know what the lump is on elbow-they xrayed elbows but the way it was done, I don't think you'll be able to see the lump. I explained about getting weird tingling and numbness in fingers and hand and she said it sounds like my ulnar(?) nerve is being pinched. I have to wait to see what xrays come up with before they'll send me to get a nerve test done. Apparently the waiting list for this is several months!!
They've taken blood to check for vitamin deficiancy and thyroid function - both of which were done recently by gp and they came back normal. The only good thing that came out of it was getting the Anti CCP blood test done but she said they expect that to come back negative anyway :shock:
They didn't have the letter from my dental consultant about my OA in jaw either so they have to write to him and get it sent-again!
They wanted to put me on sulphasalazine but because my bloods were normal they couldn't justify putting me on it. Told them Etodolac wasn't doing anything for me but was told 'well, you'll have to take something' :? My dodgy stomach means I can't take alot of anti-inflams. I've been on several all giving me bad side-effects but she said it was my choice to pick one that I thought had helped me????
Of course, I burst into tears
I came away (in agony) wondering what to do with myself. I do feel like people are thinking I'm a fraud. Am I just imagining all this? I'm gutted, angry and downright miserable about all this. I hate this pain but worse is the not knowing what's wrong with me. I was wanting to apply for a blue badge cos I'm having great difficulty and pain when driving and walking but I guess that'll have to be abandoned!
I've just about had enough of all this, constantly being told 'You're unusual' and 'It's funny how you have all this pain yet your bloods are always ok'. I have went on long enough but hopefully you've managed to get to this bit
I feel better (well, a teeny bit) getting this off my chest. Thanks,