I'm new to this forum and am writing on behalf of my girlfriend who has severe RA - I hope you can help.
I know it's probably a common complaint, but today she had an appt with her consultant at Newcastle Freeman Hospital which has left her very upset, if not despairing.
She is currently on a trial with the drug Rituximab which is almost over after 3 years, yet despite this quite significant fact he seemed quite dispossessed of any facts about the trial protocol or my gf's situation, needing constant prompting and updating ("ah yes, I remember now" could be his catchphrase). So the woefully brief time she had with him - 5 minutes - was reduced to a farcical 'refresher session' in which my gf proved to know more about the complicated trial she is on than her consultant.
He also blithely mentioned that she might have 'a touch of Lupus', which might be a mere sideshow to him but to my girlfriend would be further devastating news about her condition.
We all know how busy consultants are, but is there any redress for patients in a situation like this? The consultant in question is very well regarded (Prof John Isaacs), but it seems to me that he has so little time for his patients as to render the appointments useless.
Sorry this is so long, and thanks again in advance.