unfair hospital means test for enbrel
hi everyone, i receive first class care from my hospital for my ra, but i feel that a practise they introduced a couple of years ago is unfair. after consultation involving feeling the joints and looking for swelling ect we are now asked on a scale of 1 to 100 how well we feel. 1 is good 100 is bad. you have to be very careful what number you give as there is a formula worked out that determins whether you stay on enbrel or lose it. it has got to the stage that if you have a tiny flare through probably trying to do to much (which is not the drugs fault) you could lose it as its very expensive. i think an examanation and chat about if you have experienced any problems is enough without having to guestimate youre own condition. does anyone know how the formulae works? problem is the enbrel is so good you sometimes forget and try and do to much.