extreme tiredness and RA?? advice please.

mistywillow

Hi All
Just lately i have been suffering with extreme tiredness, not of the sleepy sort but like my body has been weighted down and it is literally too much effort to move it. It just feels so oooo heavy!

Does any one else have this and would increasing my methotrexate help this? my rheumy wants me to anyway but i forgot to mention to him about the fatigue!! :roll:
Hope you are all having a good day and all your arthurs are away on holiday! :P
Gillx

petmad

Hi Gill, I have OA rather than RA, however do suffer periods of debilitating tiredness. I just took it that it was another lovely affect of arthur. Linda

skezier

Hi Gil,
I did you a long pm earlier but I lost it, the pm not the brain .... Tho it has to be said that disengages alot! I will try another in a min.
I have been doing a bit of reading on RA and some where it said in a pol of people who sadly have it that extreme tiredness was the worst bit. It didn't say anything about making it go away I'm afraid. Can you ring the Rumo Nurse and ask?
I also have the tiredness and at present like Linda only have OA, but there is a question mark on that just now....... I think Linda you have the same ? on you as well? I hope you both have better days to come. Cris x

debatat

Hi Gill

Sorry to hear that you are suffering with this. I ahve Ra and lupus and do suffer terribly with the fatigue that you mention, it is horrible. I am on plaq and pred and am just starting to feel normal. I have never taken meth so have no experience of this to offer you. I would guess that for the rheumy to want to up your mtx the disease control can't be good at the mo which is going to cause the terrible fatigue. Maybe it wouldn't hurt to try? I would discuss your feelings with him or your rheumy nurse tho. Hope that you feel better soon.

Take care

Deb

lesleygraham

I have severe RA and I am going into hospital today for a second infusion of Retuximab. I have tried all other drugs and apparently this is the 'last resort'. Anyway, the extreme fatigue you mention is part and parcel of arthur. I find that if this sweeps over me I have no choice but to rest. I also find that the next day I get a really bad flare up and I am in alot of pain. I have struggled to look for a trigger for the flares, like what I eat, the weather, doing too much, however I cannot find any link so it is down to the arthur being unpredictable I suppose.
Take care
Les

haagan

Hi Gill
I have PA but I suffer very badly with chronic fatigue. I am in the process of increasing my met because arthur is uncontrolled, I moved from 10 to 15 and the only effect it has had is to give me nausea which I didn't have before. So back to the drawing board for me but hopefully it will work for you. I find I can cope with the pain but it is the tiredness that stops you doing anything without having to take regular breaks. Good luck Fay

mistywillow

haagan wrote:

Hi Gill
I have PA but I suffer very badly with chronic fatigue. I am in the process of increasing my met because arthur is uncontrolled, I moved from 10 to 15 and the only effect it has had is to give me nausea which I didn't have before. So back to the drawing board for me but hopefully it will work for you. I find I can cope with the pain but it is the tiredness that stops you doing anything without having to take regular breaks. Good luck Fay

Hi all
Thanks for your replies, feel a bit better today but it really adds to the difficulty of getting things done does n't it. I might increase my mxt dose next week, i did n't this week as i want to think about it. Had in mind to cut down not increase my dose but maybe this is just unrealistic. The rhemy looked at my past notes and said it was a lot better controlled before and i had said i was able to do more things then. I think you gradually get used to the state you are in even if you are deteriorating because it happens gradually and some days are better than others.

Hi Skezier
Got your redone PM thanks! Its the only thing that doesn't seem to work so well on the site, the e mails disappear, have only gone into the ether and not the recipient and you can't get a copy of them back and so have to redo them from start.

Take care love
Gillx :P

airwave

this fatigue is just a fact of life with arther, if I don't sit down and rest once every morning and afternoon, come evening I just sleep and then go to bed! I go up the wooden hill early anyrate. its almost as though you spend the day walking through porridge and get tired......

8) Its a grin honest!

jackie1955

Hi,
When I first came on to this site I kept reading about the extreme tiredness, and I thought "well I don't have that".......

Ha, I should have been thinking " I don't have that YET"!

Boy, did it catch up with me

But I've quickly learned to 'pace' myself and if I do need to rest then I do!

A girls gotta do what a girls gotta do

Jackie x

mistywillow

jackie1955 wrote:

Hi,
When I first came on to this site I kept reading about the extreme tiredness, and I thought "well I don't have that".......

Ha, I should have been thinking " I don't have that YET"!

Boy, did it catch up with me

But I've quickly learned to 'pace' myself and if I do need to rest then I do!

A girls gotta do what a girls gotta do

Jackie x

Hi Jackie
its weird i didn't have it either for the last 10 years but its sudenly come on big time. Skezier described it as concrete legsand gravity being doubled! EXACTLY!

Rest away girlies if thats what it takes, i guess will have to join you! Gillx

suzster

i really know the tired heavy body feeling, i'm sure my family think i'm lazy because some days just getting dressed is like a marathon.
i just assumed it was another of arthurs lovely add ons!

oh airwave, you made me smile, my dad always said 'up the wooden hill' when i was a little girl and it was time for bed, i never understood what it meant, but it just reminded me of when i was younger!
i haven't heard it for years!

salsal

my tiredness has been helped by humira whether this ibecause its made me feel better or the drug i dont know i still get leaden type limbs but a bath or lay down with my legs up soon sorts it hope you find something to help in the mean time pace your self take short breks frequently xx

katekelly

OM goodness when it hits me I have to lie down no matter where I am. It's as if my head is too heavy for my body and I can't hold it up. I feel a wave of nausea and can hardly string 2 words together. It takes about half an hour for it to pass and then I feel weak for the rest of the day. But then as someone once said to me it's only a touch of arthritis! :x ....welcome to my RA world!!!! Should we tell them about the pain too! Sorry just about to go into rant mode!!! will stop now.

katherine810

I have exactly the same !

I told my consultant but he didn't think it was to do with my RA because it's not 'active' atm, well i had a blood test that day and my ESR has gone up so maybe it is the start of a flare and he didn't listen to me...

He also was going to put my MXT up but decided against it for some reason...

Doctors Can't live with them, can't live without them!
Hope your feeling better
xx

mistywillow

katherine810 wrote:

I have exactly the same !

I told my consultant but he didn't think it was to do with my RA because it's not 'active' atm, well i had a blood test that day and my ESR has gone up so maybe it is the start of a flare and he didn't listen to me...

He also was going to put my MXT up but decided against it for some reason...

Doctors Can't live with them, can't live without them!
Hope your feeling better
xx

Hi All
yes it is a bit of a coincidence that so many of us have it for it not to be associated with our old friend! Funnily enough though It never occurred to me that it was part an parcel of arthritis! :shock: Always glad to know someone else out there knows what it feels like, although honestly i would much rather be sharing fun things with you guys!
Take care Gillx