Reactive Arthritis
vickymo
Member Posts: 4
Hi I have just been diagnosed three months ago with chronic reactive arthritis. I feel determined to get well, by understanding the illness.
I was on sulphasalazine 4 pills a day and Arcoxia a NSAID 60mg a day. My protein markers were up at 41 at the worst stage, and went down to 8, so I cut the sulphasalazine to 2 pills a day. Now my inflammation/protein markers are going up again from 8 to 12 to 16 every two weeks.
Can anyone give any advice on this? I am thinking whether to call the consultant and if I should put the dose up again. The problem is the sulphasalazine makes me feel incredibly ill with headaches.
Also I had this flare up after a period of prolonged stress. Does anyone out there have a theory that this type of arthritis might be stress related?
Thanks for your comments.
I was on sulphasalazine 4 pills a day and Arcoxia a NSAID 60mg a day. My protein markers were up at 41 at the worst stage, and went down to 8, so I cut the sulphasalazine to 2 pills a day. Now my inflammation/protein markers are going up again from 8 to 12 to 16 every two weeks.
Can anyone give any advice on this? I am thinking whether to call the consultant and if I should put the dose up again. The problem is the sulphasalazine makes me feel incredibly ill with headaches.
Also I had this flare up after a period of prolonged stress. Does anyone out there have a theory that this type of arthritis might be stress related?
Thanks for your comments.
0
Comments
-
Hi Vick
I can't help much, but would like to welcome you to the forum from me!
I think there is a school of thought which does say that stress can definitely make arthur worse.
Sorry the sulfa is making you feel so sick, but I think I would take advice from, maybe, rheumy nurses if you can?
I hope you can soon get on something which will suit you.
Take care
Toni x0 -
Hi Vicky
Welcome to the forum. Sorry to hear you have reactive arthritis.
Rainbow77 is the person who needs to see and reply to your thread. She knows all there is to know about ReA. I believe it was food poisoning that unfortunately triggered it all off for her.
There are other threads about it on here but you would probably have to do a search to find them.
Look after yourself,
Elna xThe happiest people don't have the best of everything. They just make the best of everything.
If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.0 -
Hi Vicky
Just bumped up a past thread for you on ReA.
E xThe happiest people don't have the best of everything. They just make the best of everything.
If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.0 -
Hi thanks I will look up the thread.elnafinn wrote:Hi Vicky
Welcome to the forum. Sorry to hear you have reactive arthritis.
Rainbow77 is the person who needs to see and reply to your thread. She knows all there is to know about ReA. I believe it was food poisoning that unfortunately triggered it all off for her.
There are other threads about it on here but you would probably have to do a search to find them.
Look after yourself,
Elna x0 -
One more thread on ReA bumped up for you, Vicky.
E xThe happiest people don't have the best of everything. They just make the best of everything.
If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.0 -
bumping this up to the top again0
-
fellow reactive arthritis sufferers i have good news. i'm pretty sure i know what made me ill - i had moved to a house that had black mould. A healer told me this was the problem. I have left the house and taken all the steps that someone with multiple chemical sensititivy would take - and lo and behold my arthritis has improved out of all recognition with my inflmatory markers down from 41 to 14 and today i have been told i can stop all the drugs.
i now eat organic food, filtered water, all personal care products from health food shop and I am visiting the breakspear medical hospital a specialist hospital for environmental allergies.
I think it is an avenue worth going down. It makes sense that our type of arthritis is an 'allergic reaction' or infection... and my new cleaner environment has made all the difference.
good luck. get well. Vicky0
Categories
- All Categories
- 12.2K Our Community
- 9.7K Living with arthritis
- 777 Chat to our Helpline Team
- 398 Coffee Lounge
- 23 Food and Diet
- 224 Work and financial support
- 6 Want to Get Involved?
- 173 Hints and Tips
- 400 Young people's community
- 12 Parents of Child with Arthritis
- 38 My Triumphs
- 128 Let's Move
- 33 Sports and Hobbies
- 244 Coronavirus (COVID-19)
- 21 How to use your online community
- 37 Community Feedback and ideas