TRYING TO COME OFF PREDNISOLONE

tamnwill · 17. May 2009, 19:01

emmarose33 wrote:

Sorry I haven't read what previous posters said.
I just wanted to say that I am also having a tough time coming off pred. I couldn't cope with dropping it by 5mg, so have been prescribed some 2.5mg tablets, and will drop 1 a week.
TBH I am still having trouble and feel totally rubbish even dropping it by that much.
Still don't know why it is so awful to stay on it for a long time? I know it thins your bones and can make you a little chubby, but is that it? is there nothing they can do to protect your bones? I felt amazing when I was on 20mg (perhaps a little high) but it was as though I didn't have arthritis at all. Such a difference in my quality of life.
Anyone care to explain why it's so important to stop taking it??

Hi there, I have been on Pred for 18 months, various doses, MY understanding of the reason for eventually coming off it is it apparently effects your bone density, is not a 'long term' solution as it does not prevent the 'condition', and it thins your skin, this apparently isn't just the layer that we van see but the tissue inside our bodies, for example my mum who has been on it for 35 years!!!! yes 35!!! ( as much as 100mgs, due to another completely different condition to Ather) has terrible trouble when she has to be operated on as they have difficulty sewing her up internally due to the poor state of the tissue...........but having said that, it has kept her alive (her words not mine!)............I have RA and been reducing my pred over 3 months from 20 to 2.5 with no side effects at all, so I think 'time' is the key.........allowing our bodies to get used to the reduced doeses helps in my experience. I will be going onto 1mg for about a month in a few weeks, so fingers crossed. xxx Tam xxx

joyous · 18. May 2009, 08:06

joyful164 wrote:

colinone wrote:

Hi Joyful, I'm Colinone because the others had been taken and it was all i could get i tried foor colin1 but it was taken.
Well a bit of a story about the Alendronic acid it oroduces to much calsium for me as i have kidney stones, surgeon will not remove them because of all the drugs i'm on. However he says if it gets so bad i cant cope he will remove them. Had the other side done last year as well as the Gal bladder out. I do take calsium tablets daily when i remember. A "cv hey they are in demand now becoming a collectors item.

Take Care
Colin

hi there i couldn think of another name my name is joy i get called alsorts ha ha .

Hi Colinone

Thanks for explaining the name thing.
Sorry to hear about the GB problems. Must be very painful for you and the diabetes doesn't help either. Medication must be a real problem. I daren't even go thro all my other probs,oh well, if you want to know. Hietis Hernia, helicobactor ???? cant spell it, diverticulitis and very very high blood pressure, so there are a few tablets to take for them to add to the PA stuff. BP was 203/107. Got it down to 172/94. Still high. I worry too much
Talking about forum names, I see there is a Joyous in the system. Many years ago, someone where I was working at the time call me Joyous and I really hated it. Her name was Ann. You can guess the rest. Just called her Annous.

Goodnight
Joyful

joyous · 20. May 2009, 13:51

hi all well i have managed to drop one tab started on mon . goin to try day on day off felt tired yesterday and my joints did feel stiff thou in my knee that was on tue, went shopping today my feet were were murderin me again couldn wait to sit down and get my shoes off feel tired as well im detrermind to get back down to the org dose of just one 2.5 mg only went up a does after my op in 07 . other than that im ok today feel like i could sleep for england thou lol xx

TRYING TO COME OFF PREDNISOLONE

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